Hello all

Former Member
Former Member
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Hi everyone, it's a difficult one this I've never used forums or support lines before, I'm a 50 year old male, I was diagnosed with bladder cancer last year and my kidneys have also been affected by the tumour so I have had to be fitted with urostomy bags on each one. I have just finished first course of chemo and have a scan tomorrow so it's a frightening and anxious time. The worst part for me is the fear of however long life is after this is that it will be lonely, I won't go out and meet anyone ever again because I'd be too embarrassed about if I end up with no bladder or urostomy bags forever or whatnot. I have a couple of good supportive friends but my family are rather scattered and it's also surprising who ends up distancing you. On the positive side I got back in touch with an old friend I hadn't seen for ages, he has been amazingly supportive and it's been lovely to catch up,  its almost like there wasn't a ten year gap in our friendship! I have two daughters 25 and 16 and a son of 9. I'm very worried for them, I want them to grow up with a father. Well sorry for rambling but there it is, if anyone has had a similar experience or just wants a natter here I am. :)

  • Hi Kapachin0, just to say welcome to this friendly group. My husband's bc has been totally different to yours but it's such a helpful group, I'm sure someone with experiences more like yours will be along soon. Whatever kind of bc you have, as you probably know there are many treatments that can be tried.

    Kind regards, Denby

  • Former Member
    Former Member in reply to Denby

    Thank you Denby :)

  • Hi Kapachin0 and a welcome from me. I went a different route but I am sure others will be along to share positive experiences of bladder removal. Best wishes.

    Best wishes to All,   rily.

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  • Hi Kapachin0,Welcome to this friendly group,I hope you will find it helpful.We are all at various stages and a few of us are leading full lives minus our bladders.Good luck with your scan.Best wishes Jane

  • Former Member
    Former Member in reply to winkers60

    That's helpful to hear thank you Jane, it's a scary bit of unknown now till results of today's pt scan then will find out a plan :) Hope your well today

  • Hi Kapachin0,Things usually feel better once you have a plan.There is plenty of experience and support here and hopefully we can allay your fears of being lonely.Best wishes Jane 

  • Former Member
    Former Member in reply to winkers60

    Yes I'm sure you're right, I'll try and enjoy the rest in between the chemo and the scan results and hopefully then will get my head around the plan bit, thanks for your support :) 

  • Hi, such an upheaval in your life is hard to get used to. Might be worth looking upif there is a cancer support group in your area - there is often one linked to the hospital. Try not to look too far ahead, just take things a day at a time. Hope all goes well for you.

  • That sounds like a good idea.It was good to hear that you have the support of your old friend.I was very touched to receive letters and cards from the father of an old boyfriend who I don’t know that well.I had good support from both of them.I hope you don’t have to wait too long for the scan results.Best wishes Jane 

  • Former Member
    Former Member in reply to winkers60

    I have a meeting on the 19th July to discuss the scan so not too long to wait. That was a nice gesture from him , people can be very thoughtful and very surprising :)