Scared

Hello Grateful 1972 and welcome to the group. Please try not to be too anxious about the previous episode being years ago. My OH had an actual what we now recognise as a TURBT [Trans Urethral Resection of Bladder Tumour] with no mention of cancer nor follow up. It was so many years ago we can't even remember. We forgot all about it, retired, moved house. Then the getting up at night was nuisance enough to go to the new GP. Long story short, more TURBT and  treatments , now rising 5 years of clear check-ups.

So thoughts? -  try to keep busy so you don't drive yourselves worried in the waiting times. Because it will be several weeks even after the TURBT before you find out the grade [type] and stage [has it invaded the muscle wall a lot, not so deeply, or not at all?] 

Macmillan do a helpful free info booklet you can call and ask to have sent out. Steer clear of google.

Think positive as now he is in the system he will be looked after, while many people do not get diagnosed as easily as your husband.

Best wishes, Denby

Good morning Denby and thank you so much for taking the time to reply. It really means a lot

Hi Grateful1972 . And a welcome from me. Just to add to what Denby says, Google has lots of out of date and misinformation. Mac has provided accurate information on treatment HERE . Many of us and our partners have been through this, so always someone here with an answer. Best wishes.

Thank you. I have been reading this information. This period of such uncertainty is tough 

The early days of uncertainty and not knowing can be the worst as your mind goes in to overdrive. Once on the treatment path, things become clearer and there is something positive to focus on. Best wishes.

Hi Grateful1972,

I was diagnosed in 2021. The black hole I felt in was the scariest thing I have ever experienced in my life. We all understand how you feel on this forum. But there are so many good stories. Bladder cancer is one of the most treatable. A doctor once  told me that if he had to have cancer  he would chose bladder cancer... 

My advice is to wait for the lab results after the operation. After those you will know exactly your course of action. Meanwhile,  read all the good stories here  including mine. I have been clear for 2 years so far. And I am not worried. Once you get diagnosed they will keep a close watch. And do not Google. That was my mistake.

All the best. Let us know.

Hi Grateful1972,A warm welcome from me too.We all know how horrible the waiting is but try to keep busy and distract yourself.Once your husband has the TURBT results back you will know what treatment is available.People tend to feel better once they have a treatment plan.Please ask us any questions there is usually someone with experience to advise and stay off Google if possible.Love Jane 

Thank you for taking the time to reply

Thank you Jane 

Hi grateful1972,

It certainly is a scary time. I found reading this forum and other people's personal experiences really did help me.

Everything was a blur and I couldn't really apprehend what was going on. I couldn't take in most of the information during the consultations, but my wife paid much better attention. So taking her to meetings etc helped me a lot also.

The TURBT operation for me at least wasn't too bad. The fear of the operation was worse than the procedure.

I'm only a few month's in on my diagnosis and treatments, but many people on here have lot's more advice etc 

I'm not sure I can add anything to ease your fears, but I went from fearing the worst to I'm going to get through this.

Best wishes.