Hello fellow forum members from a male with a new diagnosis

I agree, perhaps a sign of the times?

I will see a Consultant, somehow. I hope the system is not becoming, "Take it or leave it" because of staff shortages.

 I really hope not.If you needed surgery you would have to see a surgeon to discuss options in full.I don’t see how this could be left entirely to the nurses to go through.Things have altered so much since Covid it’s hard to know what is normal practice now though.Prior to cystectomy I saw the surgeon for an in depth discussion.I also met an anaesthetist,pharmacist and the advanced recovery nurse at the pre op assessment.Best wishes Jane

How are you settling into your new home ? I’m packing up to sell mine.There is so much to do before I can put it on the market but my aunt is coming down to help next week.

I'm pressing that 'wry-smile' button...at least she helps even if sometimes a pain. If only she could succeed in opening your sister's eyes to her situation... sad button.

Still lots and lots and lots to do, never ending. The bungalow only had one cupboard and that housed the boiler!

I won't mention the lack of gas, or the garden which was hidden in ivy. Even the large water feature was hidden in the jungle.

I wish you better than I have fared and hope all goes well for you.

I had a shoulder operation and had several meetings with the Surgeon. My wife had breast cancer and same there, no problem meeting with those you should be able to meet in a life threatening situation.

I wish you well with it all.I’m still toiling away after over a year.I never want to be an executor again it’s been so stressful.

I feel for you. Been nearly 3 years since my Mum died & my brother & I still haven't got her house sold and done final division of estate.

I feel for you too,the situation seems to drag on and that’s difficult when you are grieving.I hope you get the house sold.Love Jane x

I received my biopsy results today from a nurse.

I have T2/G3 muscle-invasive cancer with multiple tumours.

The first suggestion was a complete removal of the bladder and prostate.

After discussion about radio therapy, neo- bladder and finally a stoma I was told I was already on a long waiting list for oncology referral. Apparently BCG is not licensed for T2.

I was told I would be able to speak to the consultant who is based in another hospital but also worked at my local hospital. We would discuss radio therapy as a first line but as I have multiple tumours they would radiate the whole bladder if the consultant agrees. This could affect the bowel too. He would also consider a neo-bladder even at my age as I am going on 85 in a 75 year old body apparently ;)

So, that clears up the concerns expressed about not seeing the consultant but I still have the feeling some people may have gone for the full removal after speaking to the nurse alone.