Hello fellow forum members from a male with a new diagnosis

Hi

It doesn't effect people the same way, by and large I was fine. However, in retrospect  I didn't realise how tired I used to get. Glad you're doing well.

Yes, the tiredness creeps up on you I found. 

I've just had a scare - temp. Of 32. 8 after having PIC re- dressed. A&E fouled up and it was over 4 hours before I got antibiotics in case it was sepsis coming one.

Next week is last week of chemo and radiotherapy. Not sure of the form after that atm.

Current problem is loose bowel movements after radiotherapy. I'm wondering when if ever that will get back to normal. Also , bladder, does it return to normal size? Maybe I need to be mean to myself, hold it in to help it expand lol.

Hi  makem . I had dodgy bowels and fatigue for several weeks following radiotherapy. I then had a cystoscopy under GA to check how things had gone. All well so far. Best wishes.

Hi makem,I’m sorry to hear you had a scare and I hope the antibiotics have helped.Best wishes for the rest of your treatment.Jane 

Ditto

Hii all,

I am having 2 x 1 week sessions of chemo and wear a portable pump. The chemo sessions are separated by three weeks without chemo. Over the whole 5 weeks I have daily radiotherapy on weekdays. That's 25 radiotherapy sessions combined with 10 days of chemo.

Hi makem . Sounds like similar treatment to me. I am due for my annual cystoscopy next week. It will be over nine years since I had my treatment. I hope all goes well for us . Best wishes.

Back again

My pump has been removed but the PICC line remains. Apparently it will be flushed weekly, I know not where yet.

What I wondering is - how long it will remain, I assume until no further chemo is needed. This would be after some external examination to determine what stage the treatment has left me with I think.

What is the experience of others who chose chemoradiation? That knowledge would be most helpful.

Hi makem . I had my PICC line in for several months. I had a district nurse coming to flush my line but that was pre Covid and I am sure they will sort you out. There will be some further tests and scans along the line and they usually leave it in till no longer needed. Comes in handy for blood tests. I had six weeks of chemo (Gem/CIS) . A few weeks break and then six weeks of daily radiotherapy. I believe it is now done over 4 weeks. No problems during treatment but after treatment finished I had dodgy bowels for several weeks and bouts of fatigue but they faded. Several weeks later I had CT and MRI scans, Biopsies under GA. Several more weeks waiting for results to be told they could find no evidence of cancer. That was an emotional day. Over nine years clear now but have my annual flexi scope this Wednesday so fingers crossed for that. Best wishes.

Best wishes for Wednesday rily.

Denby