Awaiting bladder biopsy

Hi Emmaj00, welcome to the group. You have come to the right place to find friendly reassurance and info. Unfortunately many GPs take the line with younger female patients that yours did, " oh it's just an infection" etc etc. But certainly tiny is better than bigger. Please do leave google alone, it's really better to have the stress of not looking, than the stress it has already put you under continued. Come here and also talk to the Macmillan phone helpline instead. Please try to breathe and not panic because even if it is not benign there are various treatments that can deal with it.

The biopsy will essentially mean they scrape the whole thing away if it is not muscle invasive. It will be sent to the lab to work on to discover what kind of cells were growing. This takes a week or two to carry out so it's wise to concentrate on getting involved in things that distract you and control your anxiety [lots of fresh air and exercise if you can] , favourite hobbies or books etc to pass the wait for news. Everyone here has had that wait for themselves or a loved one so knows how you feel. 

Thank you for replying. I just dont cope well with the unknown. Iv already decided this is a death sentence i am due to be getting married end of september and i am petrified now that this wont happen.  I never thought in a million years they would find anything on friday. He said it was fluffy tissue and it could be nothing but i am convinced now its cancer as iv read many arent benign. I have literally not eaten or slept since friday as the anxiety is too much. I am scared that i am going to die. 

No one can ever say never Emmaj00 but it seems really unlikely from what you know and have shared so far that this is anywhere near a death sentence. Have you told your fiance about it? Also if your mental health is so rocky please think about talking to someone besides us folk. Do you have a CPN [community psychiatric nurse] or counsellor that you see for instance? And you can always talk to Samaritans, they aren't only there for people who are suicidal but anything where you need to talk. Mental health help is available in every area, you can find contact numbers online vis nhs site.

Promise me you will get yourself some nice comforting food now?

Like I say, so what if it is not benign. My husband had a whole bladder full of tumours five years ago and now he hasn't got a single one and is looking forward to giving our younger daughter away at her wedding in a few weeks. By the way neither of us cope particularly well with unpredictable things as we are both autistic.

I will get some food now i am feeling hungry. Can i just ask if he said the rest of my bladder looks ok then does that mean it isnt invasive? He said it was just at the neck of my bladder where he had seen the tiny lesion. I just panic what if this has spread as iv had the microscopic blood now for 2 years but surely the tumour would be a lot bigger??? I dont know he also said i would hear in 3 to 4 weeks about my biopsy is that a long time to wait?

Taking the last bit first, no it's now unusual to wait that long because once the lab have done their bit, there is usually a Multi-disciplinary Team meeting [MDT] once a week to discuss all the cases including yours. Invasiveness is about the depth of the tumour into the bladder wall or not, rather than the width-wise spread.. As for the micro haematuria, who knows? maybe someone else will have had experience of that. They may take scrapes from a few different places that look ok as well as the visible bit, to be safer.

Now go and enjoy your food Emma love.

Hi Emmaj00 . Just to echo Denby. Bladder cancer can be treated successfully. Mine was very advanced and that was ten years ago. It sounds as though yours is early. It is hard not to worry when you hear the word cancer, but when you have your biopsy you will have a much clearer picture of what is going on and if it does turn out to be positive, it will be dealt with. Best wishes.

I havent had biopsy yet he said i will hear about having one in 3 to 4 weeks i thought if suspected cancer should be within 2 weeks? I just cant switch off from thinking about it i feel sorry for my children seeing me upset i dont want to frighten them but i am so scared that it is advanced or spread even though i feel absolutely fine in myself. I have never actually visably seen blood either its just every time they dip my urine at the g.p they say microscopic haematuria.  

Emmaj00 this long to wait is not seen as any biggie in the world of bc. Try to perhaps rationalise it this way? - why scare your children any further unless and until you have a real reason to scare them? did you ever try breathing exercises, this could well be a big help in managing anxiety.

Hey my husband never even had the blood in urine, just getting up too much at night. And as I said, he had masses and is now clear. Everybody presents a bit differently but it still doesn't mean you won't be here in many years' time. Once the medics have seen a growth you can expect regular checks and close monitoring, so it shouldn't have a chance to get serious -  that is the experience of many here. Those for whom it did turn out serious due to the type, or being late diagnosed due to zero symptoms, still say life without their bladders is great. Please don't take a flippin' fleet of buses to meet your troubles, if a granny may advise.

Remember, breathing right actually alters your blood chemistry to improve anxiety.

Spoke to one of the specialist nurses she said from what he has said it sounds superficial and she said from what he has said on my letter we are talking small very small. She did say that maybe my uti i had in feb could have caused it. She just said they will most likely just scrape it all away when i have biopsy if its that small and then i will need to keep going back for cystoscopy so they can keep an eye on it. She just said i should be absolutely fine and try not to worry but couldn't say how long i would be waiting. I really hope its nothing serious 

Hi Emmaj00 . The procedure you will be having is fairly straightforward. Usually done in day surgery but prepare for an overnight. The offending cells will be scraped away and then a few weeks wait for results of the biopsy. The waiting is always the worst part. I hope all goes well. Best wishes.