2 tumours?

Yes I have one at the opening (they’re pretty sure that’s what it is as it’s just all swollen etc) and one large in at the bottom on the left wall of the bladder xxx

I’m so sorry to hear you are in so much pain.I do empathise I was in tremendous pain before the TURBT and bladder removal.It’s important you drink enough fluids even just small sips throughout the day.The pain will be worse if the urine gets too concentrated and acidic.I really hope the TURBT will alleviate some of the pain.

Hi Jane, yes I’m drinking lots of water and you’re right, it does get worse when I’ve not had enough to drink xxx how have you been since having your radical cystectomy? Do you have to have any checks or anything? Xxx

Hi,It’a usual to have scans as follow up after cystectomy.I was supposed to be going onto annual scans but the most recent one showed a problem with my kidneys.I’ve been relatively ok since the surgery.8 months post op I was able to resume caring for my elderly disabled mother.Since mum’s death nearly a year ago I have been clearing the family house ready for it to be sold.I have a stoma but manage well with it.Love Jane x

Oh no, I hope everything will be ok, what have they said? I’m so sorry to hear about your mums passing, it’s absolutely heartbreaking. I can empathise as I nursed my mum before she passed in 2015 xxx

The radiographer phoned and said the kidneys were swollen and not working as well as they should be.I have a urology phone appointment next month so should know more then.It’s been really difficult getting any information from the hospital since the pandemic.I have a specialist nurse but she is not very helpful.I used to get copies of my hospital letters but that seems to have stopped recently.I shall have to find out why.Sorry to hear about your mum too it is hard when you have nursed them.Mum had a brain haemorrhage in 2004 and I nursed her from 2004 until I got cancer in 2019.Mum was in respite care while I recovered from the surgery.I looked after her from June-Nov 2020 and then she became Ill and went into hospital.She was back and forth between hospitals finally spending her last year in a nursing home.It was not the end I wanted for mum but her dementia was so advanced that she needed more care than I could provide.I miss her terribly,we were very close.Love Jane xx

Wow I hope everything is ok with your kidneys, have the given an idea of what it could be? Xxx mum was diagnosed with breast cancer in 2013, had double mastectomy in 2014 and it came back to her bones and sadly she passed away in 2015. I’ve never really got over it (I don’t think anyone does to be fair). As soon as I’ve found out I’ve got cancer I don’t seem to be able to get her experience out of my head unfortunately xxx it seems like we’re in a deep dark depressing hole where we’re not in control of what’s going on or going to happen to our bodies xxx

Oh that must be difficult.I found it very hard to get the image of mum’s final days out of my head but they are starting to be replaced with happier memories.I am wondering if my kidney problem is a late complication of the surgery.They are not obstructed apparently.Once you have the biopsy results back you will have a clearer idea of what will happen.X

Keep me updated about your kidneys and hope it’s something that’s easily fixed for you xxx

I shall keep everything crossed for you and hope you will be out of pain as soon as possible.Love Jane xxx