Fearful of the outcome

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I am a 75 year old male who up to a few weeks ago liked to think he was fit and healthy and still working but due to some discomfort during and after taking a pee contacted my GP who over the phone prescribed antibiotics for UTI over the next few days the pain got a bit worse so I got a face to face with a different GP at my surgery, long story short after taking a sample she said that there was blood in my urine and also I had lost around 6 kilos of weight over 9 months I might add that at no time have I seen any blood present in my urine.

The GP arranged for me to have an ultrasound scan last week 26/8/22 and on Monday 5/9/22 I had an appointment with the urology consultant to have a cystoscope where he found a 5cm tumour not really what I wanted to hear. This morning I had a phone call from the hospital to say I will be admitted two weeks today for a biopsy operation to be performed.

All this is like de ja vu for me as 12 years ago I was diagnosed with Acute myeloid leukaemia but with very intensive chemotherapy and a bone marrow transplant from a very kind unrelated donor I have had many happy extra years. 

At the moment though the hardest part is not knowing what the outcome of the biopsy will be and being fearful of the outcome.    

  • Hello and welcome to the group, although sorry you find yourself here, especially after your earlier experience. Your story leading up to this will be familiar to many of us. Be aware that BC can be treated successfully. The early days of not knowing and uncertainty can be the worst. The op you should be having is called a TURBT (trans urethral resection of bladder tumour). Fairly straightforward in the great scheme of things. Usually done in day surgery, but prepare for an overnight just in case. The offending cells are shaved away with a rigid cystoscope. The main after effect is usually a bit of stinging when peeing for a few days. A few weeks wait for biopsy results which then determine any further treatment. In the meantime it is important to keep drinking plenty of water. This flushes out any blood and debris to prevent blockages and help prevent infection. Please feel free to ask anything. Lots of experience and support here. Best wishes.

    Best wishes to All,   rily.

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  • Hi JohnH,Welcome to this friendly group.There is plenty of advice and support here.Best wishes Jane

  • Thankyou rily for giving me an insight of the forthcoming procedure and your support.

  • Its good to know there are so many supportive people out there thankyou.

  • I hope you find this group as helpful as I have.As rily has explained the TURBT procedure is straightforward and it’s not too much to worry about.Waiting for the results is never easy so if you can distract yourself with a hobby etc then that will help.People tend to feel better once a treatment plan is in place.It’s best to take things one step at a time.We are all here to help.Best wishes Jane

  • Hi Mate. Welcome,

    I have had bladder cancer for 13years. Cant operate to remove the blader as it is a very long operation and my heart and lungs are not strong enough.

    I have been attending my local hospital since diagnosis 5-6 times a year for a cystoscopy where they remove a bit of cancer or into hospital for a couple of days. I had my last cystoscopy a couple of weeks ago and had an appointment to see my consultant yesterday. And he informed me that there were no signs of cancer at the last cystoscopy. I was amazed.

    So don't give up hope.

  • Hi mate 

    Great to know you have lived so long with this going on, as you will have read I'm in the very early stages of getting a diagnosis and because of the size of the tumour and weight loss my head is working overtime probably with all the wrong thoughts but thanks for your support

  • John.

    I know it is hard, but try not to worry. Worrying only causes tension and wrinkles and you don't want either.

    Be positive.

    Bob

  • Today I have had another phone call from the hospital to inform me I have an appointment on Monday the 12/9/22 for a CT scan can I ask you all is this procedure normally done before having the TURBT, things seem to be going at a rather fast pace and its making me even more worried  

  • Don't worry Rember the NHS is a big service and very often the left-hand does not know what the right hand is doing. I worked for them for over 7 years.