The next step

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Hi guys, so, just over a week ago I had my rc,  I'm very, very fortunate to say that my surgeon has managed to remove it all thank the lord. I feel blessed, but I've had a visit from my urologist who wants to see Mr on outpatients in 6-8 weeks time & I'm a bit anxious about it. 

Although a fantastic surgeon, his bedside manner leave a lot to be desired & some of the patients started referring to him as Dr doom. 

I know it's normal procedure to be seen in outpatients after as the parts removed has to go to the lab for histology, I fully accept this. They have taken lymph nodes & I'm a bit anxious what he will say upon my return. 

To be fair, I should probably be more concerned about my recovery than the next step, but I'm an anxious person and I can't get it out of my head. Is this normal? X

  • Hi Rachel. Although I went a different route (RT), I can understand your anxiety, as will many others here. I had a similar wait to see my consultant after treatment finished. They need to let things settle down and recover before seeing you. You may have a further scan in the meantime. We always overthink these things. Some consultants are more forthcoming and approachable than others, but if the results go ok, it doesn't matter. One thing to do is ask to be copied in the meeting notes. Your consultant usually sends a report to your GP and you are entitled to be copied in. I have copies of all my meetings over the years and it makes things much easier when you can take things in in your own time, rather trying to remember what you have been told. wishing all goes well. Best wishes.

    Best wishes to All,   rily.

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  • I think I know what you mean, my surgeon is brilliant & all the staff say how caring he is, but he's an utter perfectionist. So every time I went, hoping to be told how well i was doing, he would always find something 'less than satisfactory'. I have also worked alongside consultants like that, but would always choose competence over conversation if I needed something doing.

    At least you know what to expect from his manner, rather than being taken by surprise. If you can take someone with you, or have some questions written down (& take notes of answers) to personally distance yourself from what is said, that might make you feel less anxious. Hope you get good news.

  • Hi Rachel,I felt anxious waiting for my urology appointment too.I tried to find things to occupy my mind during those few weeks but I know it isn’t easy.It sounds positive that your surgeon has removed it all though so fingers crossed for good results.Best wishes Jane

  • If you've not had one yet, the next step may be another CT scan. Depending on the histology, they may then not do anything, or offer chemotherapy or immunotherapy treatment.