So an update on yesterday, I seen my consultant who I must say gave me the worse case sanario! I'm having a radical bladder removal plus they are taking away my womb etc... the fact of my age (49) and the fact that they are putting me through major surgery tells me I'm in with a fighting chance.
I've been told that chemo & radio are not very responsive to the type of tumor I have, so they have touched upon immune drugs but have to me not to jump too far ahead, but I can't help myself. My mind is in a tail spin. Any advice from anyone that's been in my situation? X
Thank you Rachel, it was pretty tough but I had no option but to get on with what they recommended. I benefitted hugely from counselling through Macmillan a few months after my surgery when my mental health was really in a bad place and I’m glad you’re finding it helpful too. It’s good to be able to talk freely with someone who doesn’t have emotional involvement and to be able to view things from a different perspective.
Sarah xx
It is hard having to place your life in someone else’s hands but they are so skilled in what they do.You have to trust in them.My surgeon spent some time with my partner & I just before I went down to theatre.I think that reassured John a bit because he was more anxious than I was.I was fortunate to have the surgery before the pandemic.Jane xx
I was just at the start of the pandemic when not much was known, and when I was in HDU there were patients there with covid, on oxygen. Didn’t see them myself as I was so out of it but was told afterwards! When I was discharged I was just getting into the house as the first lockdown was being announced on tv and it all felt very scary. Recovery in lockdown was very challenging I have to say, but that’s all in the past now, and I’ve never picked up covid in all this time since!
Sarah xx
I found recovering in the pandemic very tough.I got depressed because the only person I saw was my sister once a week on the doorstep.Mum’s dementia was getting worse and she didn’t really understand why I couldn’t visit the care home.John was shielding due to his muscle disease.I whinged a lot on here but the support of this group kept me going.I’m thankful to be out of that dark phase.Xx
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