Bladder cancer

Former Member
Former Member
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Hi everyone just been diagnosed with bladder cancer a few weeks ago, I have got a opp the 24th, and I don't know anything what there doing only that there going to take it out and see from there, I have to go tomra for pre opp and I haven't a clue we're to start or what I need to ask or know, any of you lovely people give me some advice please  thanks Jackie xx

  • Former Member
    Former Member in reply to Nelbell

    Hi how did your pre opp go well I hope, I came out feeling in limbo the nurse was foreign so didn't understand her and she couldn't understand me either, she didn't know anything what will be happening even asked me what opp I was getting lol 

  • Former Member
    Former Member in reply to winkers60

    Thank you for that jane, I got a call today from a nurse she went through a lot with me and i was asking her questions I didn't know, and a lot of what you have told me, I feel reassured now and like one of yous said just take one step at a time and wait for the histology test x

  • Former Member
    Former Member in reply to Jacaranda07

    Thank you for your message, I was worried because I didn't know anything the nurse phoned me this morning and explained a lot and reassured me of what was going to happen ext, so feel better now thank you x

  • Hi Jackie,When you are first diagnosed it is all new and can cause anxiety.This group is helpful for asking questions and getting advice.People usually feel a bit more settled once the results are back and a treatment plan is in place.Glad that the nurse was able to reassure you a bit.Love Jane 

  • Hi Jackd my pre op was awful , my blood pressure was very high , which I put down to anxiety, I didn’t want a general aesthetic bad experience many years ago but was told I had to have general, . I asked to have procedure done at my local treatment centre but was refused so have to travel to Sunderland hospital to have it done , yet I had my scan and cystoscope done at local centre , so frustrating as I have to rely on lifts to get me there , have my op next week if my blood pressure is down . So more anxiety than I needed , best wishes Nelbell 

  • Hi Nelbell,I’m sorry that your pre op wasn’t good.They have to do the op under a general because they need to take deeper biopsies.These would be far too painful to have done under a local.I’ve had superficial biopsies done under a local and they hurt.Also they have to inflate the bladder to take a good look at it and this is done under a general anaesthetic.It’s usually a fairly quick op so fingers crossed you will be ok with the anaesthetic.I hope your blood pressure comes down.Best wishes Jane

  • What a shame to have your plans upset. General anaesthetics are much better these days and it is quite a brief, light one for TURBT. You should be assessed by the anaesthetist on the day & you can explain your concerns. It helps if you are able to minimise the period of fasting beforehand. 

    Worth asking about hospital transport rather than rely on a lift, especially as you might need to stay in overnight.

  • ... and be sure to drink water at the last minute before the nil by mouth period pre-op, being dehydrated makes it more difficult to insert the necessary canula.

    Denby

  • Thank you for your reply , I guess it’s a case of just do it and get sorted asap , I’ve managed to sort lifts out so hopefully all goes to plan . Roughly how long is it before you get results of biopsy? Wishing you well 

  • Hi . It takes about 10 days to process the biopsies, but then here is a further wait for an appointment to discuss things. About 3 weeks is the average. The waiting is something everyone gets anxious about. I hope all goes well. Best wishes.

    Best wishes to All,   rily.

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