HI Everyone.

Hello Ernest,I’m glad you have found this group.I’m sure you will find it helpful.There is advice and support here.Best wishes Jane

Hi ern007, you might be interested in the first part of my husband's saga. Quite a number of years ago we don't even remember when and have never tried to check, he was troubled with frequent peeing. GP sent him to local hosp where urologist booked him in for an overnight stay 'so they could have a look to see what's going on under GA'. He was really rough afterwards and had a catheter in, which I don't recall any warning about. The surgeon said ' oh there were a lot of growths just like seaweed but there were more than we thought there would be'. No-one EVER said cancer and the only follow up was a flow clinic nurse six monthly; after he forgot to go one time being still at work that was it, nothing more. Meantime years pass, married daughter up north announces we are to be grandparents and as I'm under notice of redundancy we decide to retire north to be near [at 72 he' was happy to pack up his retirement job]. Up-at-night gets too annoying so off to new GP. After some delays a flexi shows entire bladder in his own words having seen while I sat outside " looked like inside-out cauliflower" with papillary tumours. But take heart that was 4 years ago and whilst graded high risk of recurrence G3 it was still only pTa non invasive and after treatment it's just regular check-ups. 

So I believe he had had cancer for years and years without it invading the muscle which could prove this is possible, although others are less fortunate, and I personally think you were right about yours..

best wishes, 

Denby

Hi Denby 

As far as I know, I just had the one tumour, as far as I know. I say that because at times everything is not clear..

Nice to hear your husbands tumours are   "none muscle invasive" - and have not spread. It must have  been a relief  to hear,   considering what they found,

I still get the frequent trips to the loo,  if anything more so.

I have another cancer it seems in my toe of all places, I should have gone to Blackpool yesterday but told them to get there by 8 am was not possible from where I live.  Poor sleepers and night time trips to loo means I never venture to drive until my tiredness has worn off.  So they managed to get me in at my local hospital on New Years Eave,

Back to TURBT  I had spasm  where I was desperate to urinate despite catheter,  I was told to just RELAX really was a nightmare,  The morning after the op I hade Chemo direct into bladder via catheter,  So far so good.

Later after the catheter removed i was told pass 100ml of urine then I could co home. Sounds easy..

Noooo - After two hours I was not there or after three - I drank and drank and drank - Yes!! I was there, going home after bladder scan.   This is not the end of the saga I did get home but, I may find I can finish this episode, if so I will..

Good Luck, best wishes...Ernest