Pain

Hi Trebor223 I hope you managed to get some sleep in the end. Everything does feel much worse when it is the middle of the night, and we feel so alone. Sorry I didn't see your message earlier. 

Thanks it's just at night when pain is on and the night seems so long. 

It's horrible isn't it. And leaves you feeling so drained. I have a different cancer to you, but I do know how you feel. Its a catch 22 as well because my family always tell me to take a nap during the day after a sleepless night, but then I know wont sleep later then. Hope you are more comfortable now x 

That's what I get have a sleep but not that easy when pain is still lingering around and mine seems to start at night. I try to explain how the pain feels but I don't think people really understand. All the tests I have had have left me in pain when I get home then up again all night. 

Hi . Sorry to hear the pain is disrupting your sleep. Could you give us a bit of background as to where you are up to with your treatment. Have you had a TURBT op yet? Best wishes.

I have had the ct scans and the camera probe they found the tumor. Due to my health conditions they are not able to operate as I have heart problems plus an AAA so they feel to operate would be to risky. I am waiting to find out how they can treat me I have to see a hospital doctor next week. They said about radiation treatment but I don't know have to wait and see. I am hoping they do something soon as the pain to pass water is unbearable and the soreness inside is terrible. 

Hi . In normal circumstances the tumour would be removed under general anaesthetic which would usually reduce the pain. Unfortunately this doesn't sound possible in your case. Flexible cystoscopies are know to cause infections, so it may be worth while dropping a sample off at your GP for testing. In the meantime, make sure you are drinking plenty of water to keep things flushed out. Best wishes.

Thank you I will do that as it has been going on a while. Thank you for the advice appreciated. 

Hi Trebor223, I am sorry to hear about your pain and the painkillers being little help. As well as drinking plenty of water, it may be worth try to exclude certain foods from your intake. This is because perhaps citrus or tomato or other foods may add to the irritation of an already upset bladder.

Regrettably there is another possibility. 7% of the population have a genetic quirk which means many painkillers do not work nor other drugs such as fluoxetine [Prozac]. We in the UK are very behind the USA on this, over there you can have genetic testing so the doctors know and can choose what meds to offer accordingly. Here few pharmacists and fewer doctors are even aware of this, despite it affecting several million people in the UK.

I do hope the doctors give you news soon so you are not left wondering,

Denby 

I have learnt that one about foods and drinks to avoid so I am very careful of what I eat. The painkillers I have do take the edge off it but its more of a sore pain inside and stings not like an aching pain. I tried telling them but they could not understand what I meant. I thank you for your reply appreciated thank you. We might all look the same but I think we can all react different to different things.