Male bladder cancer

Hello KimDav and welcome to the group although sorry to hear of your husband's diagnosis. I was also T3, but went a different route. I opted for chemoradiation and still have a normal bladder 7 years on. Not suitable for everyone, but something your husband may like to ask about. Many members here have had bladder removal with different diversions and always someone here to answer specific questions. Whichever way your husband goes, there can be a normal life after bladder cancer. Best wishes.

Hi KimDav,
Never good to have new members to this group but welcome.
Last year I was diagnosed stage 2, and had Radical Cystectomy to remove bladder.

I was suitable for a Neobladder (new bladder inside), which is what I have now.

More than happy to discuss my situation with your husband if a call would help.
Although you must both know that everyone is different, as is their recovery.

I have been extremely lucky in that with my Neo Bladder life is pretty much exactly as it was before cancer came into my life.

I do not self catherterise, I am 100% dry during the day and 90% at night.

Thanks 

Casham

Hi KimDav.

My husband (late 40s) had his neo bladder surgery c6 weeks ago. It is certainly a more complicated, longer surgery. The first 4 weeks recovery were hard, but he is happy with the results so far. Almost totally dry in the daytime and c 80-90% at night. He is glad he had it done. However, I suggest you talk to someone who has had it for a bit longer (Chasam spoke to my husband - it was really helpful) as still very early days for my husband. He has yet had the need to self catheterise. As I understand it, the neo can be a bit easier for men than for women. 

Good luck with your decision. 

Ps. The surgeon will also be able to put you in touch with male patients 

Thankyou, so young your husband xxx 

Thankyou Chasam. If I leave his number here, would you call him?

Thankyou Rily. My husband should of started chemo on the 9th  July but got covid, although we had both jabs, then again chemo on the 20th July, but came up positive again, so this was cancelled & they are going straight to surgery as his immune system is so low, he could get sepsis. They did say even after chemo he would still have surgery,  whereas he would of had at least 10 weeks to get used to the idea, this is now imminent.  X

• Thankyou Casham. May I ask what age you are? Also would you speak to my husband personally if I left a no: with you? I'm so hopeful now I've seen your message x

Thankyou

Hi KimDav,

I am 55, so was 54 when I had the radical cystectomy.

Of course I will speak to your husband.

I am away until Wednesday but happy to speak Thursday or after. I think you can send a number privately to me on this forum 

Chasam