What are your thoughts about this diagnosis?

Hi Marco. It is not until you get your biopsy results when you get the actual size of the tumours. The size includes the depth it has gone in to the bladder wall. Then there are different types of tumours, the most common are TCC and CIS. Everything rests on the biopsy results which then give a true diagnosis, and determines further treatment. Best wishes.

Hi Rily,

Thanks. What you are saying is that for type and stage I need the biopsies results, but I will know if it's gone deep into the bladder and maybe outside after the op?

I know you are anxious to find out more, but that report does not indicate stage nor grade which are the crucial factors. Size and number of lesions are not indicative of seriousness. I'm afraid you will have to wait until the path report is discussed by a Multi Disciplinary Team meeting who will recommend appropriate next steps. then you will have a meeting with your consultant to talk about the results and their implications. 

Easy to say, but worrying will not affect the result, so try not to guess, but distract yourself with other activities in the meantime. When you have the results & know next steps, you will feel more settled. Best wishes.

Hi Marco,Rily is right,the only way of knowing whether it is muscle invasive is after biopsies.The majority of people with bladder cancer present with visible blood in the urine.I had no visible blood,my symptoms were obstructive.I wanted to pass urine but sometimes I was unable to do so for hours at a time.A tumour had blocked the entrance to the bladder.I also picked up a urine infection in hospital that meant I was urinating every few minutes or not at all.I was 58 at the time and had suffered from Interstitial Cystitis a painful bladder condition since my early 20’s.I had years of bladder ulcers and red lesions and repeated urine infections.In 2005 during a cystoscopy scaly deposits were found in the bladder.These were pre cancerous changes putting me at risk of developing Squamous cell cancer.It took 14 years but I got cancer in 2019.Mine was muscle invasive but had not spread to other organs or lymph nodes.I am living happily without a bladder and free of cancer and the I.C that caused pain daily.I hope you can find something to distract yourself while you wait for results.Love Jane xx

Good morning I was also told on my first cystoscopy that it was 90% cancer ...I told the urologist I wasn't even going to go for the cystoscopy as I felt good and hadn't had anymore bleeding.. he said you should never ignore blood and so much can be done if you're early enough ... I hope this week passes quickly for you and then you will know what you are dealing with .. I think we all go through the phase of thinking and imagining the worse outcome but hopefully things will get easier for you ..the anxiety can cause so many horrible symptoms I never realised were possible xx take care and get outdoors as much as possible thinking about you love Tina x

Hi, as everyone else has sensibly said, you do need to wait for the proper lab results to know fully. But just to encourage you while all you have to go on is the consultant's assessment of the visuals. My husband did not have the blood but the frequency and being past 70, he too put up with it for a while before I got him to go to the GP if only because my sleep was getting disturbed. But when he saw inside his bladder at the cystoscopy he said the entire thing looked like inside out cauliflower as it was covered in growths all over. I think in the end it was listed as TCC and CIS. G3 Pta. But it was not muscle invasive and the whole lot has been cleared out, he is down to 6 monthly checks.

As everyone says, distract yourself rather than make yourself ill with stress. You may find it helps to reduce [don't go cold turkey if you have several regular drinks a day] caffeine from tea, coffee/cola at this time.

Best wishes, Denby

Thanks Jane. Good luck with your issues.

xxx

Marco

Thanks Denby,

Yes, encouraging. I know that we cannot know until the biopsies. I guess I "just" want to be reassured that there is a chance of it being curable. Not aq certainty, but at least hope ...!

xxx

Marco