Hi I was diagnosed September 2019 and operated on shortly after...very painful and not straightforward as dvt got involved, so blood thinners etc...grrr!! The 24th September was my last nights sleep of more than 4 hours!!!!) Anyway, had several painful BCG sessions and cystoscopes. All seems to be going ok!?
My issue, is my constantly wanting to pee? Probably between 20-30 times a day.Nighttime is the worst even though I stop drinking fluids at 6pm I still get up hourly.
Is this common? Will it get better?
Interested in your views please
Thanks
Jim
Rosienjim. Hi Jim and welcome to the group. Sorry to hear of your problems. I did not have BCG so not best placed to answer your concerns. We do know that BCG can cause this type of cystitis. Someone with experience of this should be along to help. Have you seen your GP or Pharmacist about this as there are medications that can help. Best wishes.
Hi Jim. Drinking more water does sound like a contradiction, but the way it was explained to me is not drinking enough makes the urine concentrated and acidic. This then irritates an already inflamed bladder causing the feeling of needing to go all the time. In the short term is does not cut down on visits, but does make for a longer more satisfying pee than the irritating little dribbles. Best wishes.
