My husband was diagnosed yesterday after a cystoscopy (tube into the bladder). We are all in shock. He incredibly has been brilliant, where as I’ve fallen to pieces.
Following a week of blood in his urine, he had a CT scan 2 weeks ago which came back clear, then had the cystoscopy yesterday . He has a flat cancer in the lining of his stomach wall. We have asked how big etc. He needs to isolate for 14 days now with the hope of getting a TURBT ASAP. Will they take a biopsy at the same time? He obviously needs to have another CT scan focused on that particular area in the bladder. Did the consultant not see it first time because it is flat?
I’m not sure how we will get through this waiting period. We are not going to tell our children or parents until we know exactly what we are dealing with the stage etc.
Any advice, words of wisdom or just hand holding would be gratefully received.
Yes I take anti anxiety tablets sertraline 50mgs ...I started them last year due to my mother having dementia and having to go into a care home ..the guilt I felt was overwhelming I think they've helped me deal with my this situation in a much better way ..I can't say I don't worry but it seems to take the edge off things and I deal with stuff better ..I haven't told my friends anything and I miss not being able to talk to them about things but until I know the results of turbt I really don't want to go into the explanation of it all xx enjoy your walk today ..do daft thiings along the way like skipping or singing loud follow the yellow brick Road is a good one
just seeing people smiling has a knock on effect on your wellbeing too ....take care but make sure you put your hats on freezing here you don't want to catch a cold
keep in touch love Tina xx
Late to the convo, hope you have a useful consultation. I think this business is often harder on the 'carer' than the patient. It wasn't until sometime after my BC that I realised just how terrified my hubby had been. Try to keep both of you occupied, eating well, drinking plenty & exercising to help keep fit & well.
Once you know the path ahead, feel free to come here & ask questions or just chat. There's usually someone here who has been down the same or similar route.
Thank you, Tina.
Glad they’ve helped you. Feel a bit whoozy today, so may swap and take them at bedtime when the sleeping tablets will help me sleep through the side effects. I know what you mean about not wanting to talk to people when you don’t know how things are yet. We’re worried about bumping into friends, neighbours on our walk. Just don’t want to talk to anyone at the moment. Would feel weird saying “ok” when they ask us how we are.
Good luck with your TURBT
Thank you, Teasswill. My husband has been so strong. He says the best thing I can do for him is look after myself. He is an amazing man
He just spoke the consultant. Operation booked for the week after next. CT scan early next week, hopefully. Urine test results from the other day not back yet. Will keep in touch, or maybe ask you questions if other things pop into my head, which they often do.
Thanks again, everyone. X
It is more than 2 years since my husband was diagnosed with bladder cancer and over 7 yrs since he had prostate cancer. I am writing here to try to give a little hope to those who are waiting and worrying.
My husband was G3p T2 TCCB. We went through everything you describe. Due to the position of his tumour, he had to have a nephrostomy to protect his kidney, before he had a radical cystectomy at BRI by robotic surgery ( amazing! )to remove everything! Despite his age he recovered well, only to find he had a stoma stenosis! He now has 2 stents to protect his kidneys. He hates his stoma but he is well and so far has clear scans.
He lives a normal life - and now I almost...... forget the awful times we went through and the accumulative time he spent in hospital.
I found McMillan at Huddersfield R Infirmary indispensible - and when at the end of my tether rang them. I know it is difficult to talk to anyone as you go through this, NEVER lose hope- and when sometimes that fails- keep going. One step at a time. Don’t be afraid to hold consultants etc to account. Ask as many questions as you can.
My husband is making lunch. We look forward. That is all we can do.
My thoughts are with all of you.
Thank you Canevara44. Your (and your husband’s) story gives me hope. Thank you for sharing.
I was walking back from the shops earlier, looking at the people in our neighbourhood getting on with their day. It’s unbelievable, really. How things can change in a moment...
His TURBT is the week after next but he has CT and MRI scans next week so things are moving. As you say, one step at a time.
Thank you, again. X
Morning everyone. I hope you are keeping well.
My husband has told me that he won’t speak to the consultant again until the end of this week after his MRI, CT scans and bloods this week. I thought he would be finding out after each scan the results. It will be a long 5 days, but at least things are in motion.
Can anyone tell me what the purpose of each of these scans is? What are they looking for? The TURBT is the following week
Thank you. X
Hi hope you are feeling bit better and coming to terms a bit better now xx I had my ct scan on January 2nd I phoned 2weeks later for result to hospital and gp but wasn't told anything..I was worried sick imagining all sorts .. when I had the turbt on February 1st the consultant came to see me before op and I asked him if ct scan was OK he said he had just looked at it and all was good I just wish I had been told this earlier it would have saved me so much worry xx take care thinking about you
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