Worried about Red Patches on bladder.

Thanks. I called my gp who hasn't heard anything yet, the consultants secretary on Monday did say she would hurry him along and he would probably write to me. She said he may call, but from the way she said it it seemed it was more likely he would write once he had time to review the results. I don't want to pester her since she was very understanding and helpful  

I know they are busy in the urological dept in salisbury at the moment as when I spoke to the appointments secretary to arrange my GA cytoscopy (that I had last week) she was telling me that she couldn't fit me in for at least 5 weeks, she was a lovely woman who thought of me when a cancellation same up and called me to offer it to me as she knew how anxious I am. 

I do now recall that my last cytology and blood tests which were both normal took ages to be given to me. I called the consultant about 10 days after they were taken at my first cytoscopy and luckily he was in his office and he gave them to Me then apologising for not forwarding them to my GP sooner. They were both normal, cytology negative for abnormality and blood tests showed normal kidney function. I hope the same is true of this second cytology as I hear it's very good at being accurate for CIS. 

Hi again Jay, yes the waiting is awful and we always seem to be waiting for something esp at the beginning, i'm sure they don't know what we all go through waiting for the post or phone call. If the MDT team met on a Tue last time then they may have met yesterday and you'll hear soon, i really hope so as i can tell how worried you are. Please don't read anything into a long wait and i'm sure you'll be back on here very soon telling us your okay. ~ Sue X 

Jay, when I suspect information isavailable but not yet to me because of the system I telephone the clinical nurse specialist who is usually easier to access and can give me an instant answer. This may be helped by the relationship built up by regular meetings for BCG treatments but nevertheless I think they see themselves as patients advocates so it might be worth a try ( if you haven't met the CNS I'm sure the hospital switchboard will put you through).

I have had redness for the last eight years since my original resection of superficial bladder cancer. I agree the treatment is quite frustrating. Frequent turbts do unsettle me but surveillance is sensible. I was told by my new consultant in December that I had a "recurrence" and he would remove it and do biopsies. I went last week and another doctor performed a hard cystocopy with no biopsy and said he regarded the redness as a congestion of vessels and said he'd see me again in six months. And so the process continues

I called my GP again today, still no results. So I called the consultants secretary who said that the consultant was in theatre all day and he normally does his admin tomorrow so he might call me tomorrow. I don't know whether that means it's serious (primary CIS) or not. I'm so anxious now I cannot even get out of bed. 

Aaaw Jay, I do hope they phone you soon with positive results!  Don't be afraid to chase them up though if you don't hear anything.  After 1 week (athough different hospitals do things differently) I always ring up for my results & get them over the phone,  Although I know that others have said that their hospital wont give results over the phone.  I know that they're busy but it don't do any harm to give them a gentle reminder, If I've not had an appointment for my cystoscopy I always ring them.  All the very best x

My friend who has been beating his invasive metastatic bladder cancer for 4 years now told me that if it was bad news they would tell me straight away. I'm not sure whether he's trying to reassure me or not though. 

Hello Jay I guess your in the limbo we have all been in when waiting for results and it can lead you to speculate is it this is it that or maybe something else.As you have seen everyone here has had different stages and grades of bladder cancer.Some have been on or are on treatments some not.Some have had bladder removal others not.All of us may have similarities but we are all individuals and hospitals can work in different ways.Its some how easier if that's the right word to cope with diagnosis once you know what you are facing and a plan is put in place.Good or bad you will only know when they get in touch so speculating and I think we have all done that is not helpful or reading into things.You could try phoning the Urology Nurse Specialist at the hospital you are being treated at they are usually helpful.I believe this has been suggested by someone else.Some hospitals won't give you information over the phone but some will so worth a try.Im sorry all the waiting is causing you so much stress and worry and I hope you get some positive news very soon.You could speak to a nurse via the Macmillan support line the number is at the side of the page if you think it might help Cruton 

I have only a answer phone number for the urology nurses and they normally take a few days to call back. When I spoke to the consultants secretary she she said probably tomorrow. I have had results of a previous cytology and blood test over the phone before. 

 I know there's not much I can do which is why I feel so helpless. Searching for answers that simply are not there. 

Thankyou to everyone for taking the time to talk to me. It helps.