Recurrence

Understandable that you feel down about the recurrence, but it is always a possibility. All depends on the path report as to next steps. If low grade, they may say carry on with BCG, but if high grade again, might discuss other options. I don't think there's a hard and fast rule about it. Best wishes.

Morning Dragonfly, sorry to hear your news following your latest flexible cystoscopy. On my journey 2018-date I have had two superficial recurrences which were dealt with two rigid cystoscopies and 15 BCG instillations. Last six month check up was clear. Wishing you the best.

Hi Dragonfire, I had at least 4 possibly 5 reoccurrences, I'm afraid I lost count. That's a very small tumour if it turns out to be one, so caught really early. In the end I had the full Lamm BCG Protocol of 27 doses (which in NHS has now generally been reduced in number because of bladder inflammation) and the last reoccurrence was after dose 21! Dose 27 was August 2021 and since then fingers crossed I have remained clear. I had begun to worry about how many times I could have TURBTs without my bladder wall getting too thin! Try not to worry (I know that's easier said than done) trust your team, and be kind to yourself. Try to relax and find joy in your life.........lovely friends/family? Junk tv? Cake? Hxx