Advice please

Sorry to hear this, must be worrying for you. The nurse may have just being following the hospital's protocol rather than making a decision themselves. I'm fairly sure that a consultant will oversee all these cases. Certainly when I've seen a specialist nurse for follow up, it is always the consultant who approves the final all OK.

Hope the TURBT goes well.

Thank you  

Totally agree with Teasswill. My treatment is lead by the CNS in Urology and there is a set protocol. The consultant is involved if there is any change to the protocol in terms of regularity of cystoscopy. 
so sorry you are facing a recurrence though. Must be so hard after being clear. I hope the TURBT is soon and goes really well for you. X

Hi Tufnaisteve, these Advanced Urology Nurses are generally very experienced, my Cancer Nurse Specialist performs Cystoscopies regularly and is recognised by all the staff including the doctors, as a urology authority. Also I have found most treatment recommendations in my case have been discussed by a Multi Agency Team before being shared with me. Hopefully you can feel a bit reassured by my bc journey which included at least 4 reoccurrences over 3 years (possibly 5 I lost count!) before eventually becoming and remaining (thus far, fingers crossed) all clear. Hope the TURBT comes quick and deals with the problem. Best regards H x

After my all clear at my last admission for a rigid cystoscopy, I had a phone call from a urology nurse to give me the news and also to tell me I would be dropping down to 6 monthly checks from every 3 months. 

Who tells you the information isn't really that important as it's all decided via various people in the MDT meetings they have about your case, so the decision would be based on lots of factors and by several people which would include a surgeon, so no it's not unusual in my opinion. 

Obviously having all clear means things are good but there is always the risk of recurrences once you have had it once. 

I would hazzard a guess if you get a further recurrence they would likely up the monitoring again to more frequent. 

It's a gift that keeps on giving sadly this disease, all I hear is "oh that's brilliant news as if I'm magically cured and it's never going to rear it's ugly head again" from friends and colleagues, and yes that is true for now at least but you can never really be classed as cured as there really isn't a cure, it either goes away and stays away or it it doesn't in my book. At best you may get classeed as no evidence of disease but that really is not the same as being cured of a disease. 

Thanks H, appreciate your comments

Thank you Simon