Evening all, I feel a bit lost at the moment, the BC has taken up my lif3 for the past 2 1/2 years, and even though I’m still having 6 monthly check ups not having to plan for Bcg is a bit weird, one half of me is gutted I couldn’t do the last set of BCG the other half is over the moon that its done…think I’ll pop into “Maggies” next week for a chat…
leo got his stool samples back, all clear as well…must have just eaten something he shouldn’t have or it was a bug…Me and Mrs Nigel are so relieved, we thought at one point we was gonna lose him….
im exhausted at the moment…
love to all Nigel
Good news about Leo, our dogs are our rock in hard times. xx Hope you can get some rest over the weekend. Maggie's next week sounds a perfect plan. Take care of yourself Nigel, you've been through a lot. Love Hx
Cheers H, like I said to Jane, I think I’ve forgotten how to relax…for the past couple of years I’ve been blinkered in my thinking around the BCG, im sure Maggies can sort me out…
Hi Rob R,
I think I can understand how you feel as I had to stop my post-cystectomy monthly immunotherapy after 3 sessions only. I was at a loss then for a while, even though it was the right decision because the side effects were getting worse. I still felt it was a minor defeat or something.
And I felt a little more strange when the quarterly oncology reviews moved back to six-monthly, after 2 years.
It's quite comforting to be in a routine after being diagnosed with cancer, I think. And we certainly do enjoy the attention, and feel a bit lonely after all the bustle ends.
I can't recall now how long afterwards I found I had acclimatised to the new normal - just realised I had one day. So I know you'll probably feel like that too.
All the best,
Latestart
Great news about Leo.
Don't beat yourself up on having to stop the BCG course. I spoke to my consultant last week as I'm moving Trusts and he mentioned it does happen. I was happy to get to 18.
He wasn't concerned at all and I've gone to Flexi instead of biopsies.
If I do get a reoccurrence then I'll cross that bridge.
You've done amazing over the last couple of years and you've had a lot to deal with.
Enjoy your break from the flex's.
Trevor
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