Feeling strange and Leo

  • 13 replies
  • 56 subscribers
  • 160 views

Evening all, I feel a bit lost at the moment, the BC has taken up my lif3 for the past 2 1/2 years, and even though I’m still having 6 monthly check ups not having to plan for Bcg is a bit weird,  one half of me is gutted I couldn’t do the last set of BCG the other half is over the moon that its done…think I’ll pop into “Maggies” next week for a chat…

leo got his stool samples back, all clear as well…must have just eaten something he shouldn’t have or it was a bug…Me and Mrs Nigel are so relieved, we thought at one point we was gonna lose him….

im exhausted at the moment…

love to all Nigel 

  • Hi Nigel,I’m glad to hear Leo’s samples are clear what a worry for you and Mrs Nigel when he was so ill.Sorry you are feeling a bit lost,I hope a trip to Maggies helps.love Jane xx

  • Good news about Leo, our dogs are our rock in hard times. xx Hope you can get some rest over the weekend. Maggie's next week sounds a perfect plan. Take care of yourself Nigel, you've been through a lot. Love Hx

  • Thank you Jane, I think I’ve forgotten how to relax…

  • Cheers H, like I said to Jane, I think I’ve forgotten how to relax…for the past couple of years I’ve been blinkered in my thinking around the BCG, im sure Maggies can sort me out…

  • It can be hard at times can’t it ? I’m much better at it than I used to be but have times when it’s hard to unwind.Take care xx

  • I think I’m very tired as well Jane…I’ll get back to my headspace app…

  • Hi Rob R,

    I think I can understand how you feel as I had to stop my post-cystectomy monthly immunotherapy after 3 sessions only. I was at a loss then for a while, even though it was the right decision because the side effects were getting worse. I still felt it was a minor defeat or something.

    And I felt a little more strange when the quarterly oncology reviews moved back to six-monthly, after 2 years. 

    It's quite comforting to be in a routine after being diagnosed with cancer, I think. And we certainly do enjoy the attention, and feel a bit lonely after all the bustle ends.

    I can't recall now how long afterwards I found I had acclimatised to the new normal - just realised I had one day. So I know you'll probably feel like that too. 

    All the best,

    Latestart

  • Thank you Latestart, just had a nap and feel better for it…Im sure I’ll be fine in a couple of days…xx

  • Great news about Leo.

    Don't beat yourself up on having to stop the BCG course. I spoke to my consultant last week as I'm moving Trusts and he mentioned it does happen. I was happy to get to 18.

    He wasn't concerned at all and I've gone to Flexi instead of biopsies. 

    If I do get a reoccurrence then I'll cross that bridge. 

    You've done amazing over the last couple of years and you've had a lot to deal with.

    Enjoy your break from the flex's.

    Trevor 

  • Cheers Trevor mate…time to relax if I can…hope you’re well mate.