A miserable few weeks.

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Afternoon all, 

I hope you’re all as well as you can be…BCG#18 was the 16th March..since then I’ve been in pain, which is normal for the treatment…but I’ve been obsessing about it…every twinge, or pain I’m looking into it to see what it could be…it’s been horrible, Ive tried everything to ease the stinging and pain but nothing seems to be working…I’ve been so miserable, not eating what I want to, losing sleep, not working much…it’s been tough, so today I’ve decided that it will calm down when it’s ready…im not gonna stress about it no more…so when Mrs Nigel rang and said she was taking Leo to the cafe, I jumped at it….parked the cab up and had a wonderful de-cafe coffee, pie chips and beans…it was so nice…didn’t put salt on the chips but had a sugar in the coffee..sitting there today I could see that I was losing my way a bit, I think I bring on the problems myself sometimes…curse of the over-thinker…im mentally and emotionally and physically exhausted….time to get Nigel back….it all starts now….

love to you all

Nigel xxxx 

  • Yep overthinking can be a bad thing that's for sure. 

    Glad you just decided to go and be in the moment today and fingers crossed you can keep the obsessive thoughts to a minimum. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Cheers Simon, hope you’re well mate.

  • Aye I'm good it's puss cat who's having issues at the moment. 

    Been to the vets twice in a few weeks now. 

    Hopefully she is on the mend. 

    Mind I'm still wearing for my next admission to check the progress of my last chemo sessions. Should really have been admitted by now so must chase it up soon, said 4 to 6 weeks and it's been about 7 weeks now. Then again if it takes longer it means one less admission this year so I ain't really complaining about that Rofl

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Ah mate, I feel for you…I love our Dog, we had our cat for 17 years…broke my heart when he went…hope your puss is ok….yes chase em up…I’ve got used to being out under…at least I get a decent Kip…hahah 

  • Hi mate,

    Sorry to hear what you've been through after number 18.

    I can fully understand, not saying that this will happen to you, but it literally took months for my bladder to calm down after BCG 18. Even after my 6 Months break my bladder was too inflamed to continue, with the next batch. Although I had my biopsies though (thankfully clear), I've decided not too continue with the BCG treatment.. If I have to go back at some point then I'll try again.

    Hope things improve for you soon matey. Time.to get Nigel back eh, sound's good.

    Trevor 

  • Hi Trevor, I know #15 was bad as well..that took 3 months to recover.. ithis time it’s stopping me doing normal stuff…I’ve just started on statins as well…im having to set reminders for what pills I have to take…peeing is still painful but only for a minute or so…just hope the sleeping improves…what’s your next step mate 

  • Yeah I found it quite difficult getting back to normal for sure. I did manage a concert in-between, but was really considering cancelling, thankfully I didn't but must have had about 40 wees that afternoon lol.

    I've just exchanged on my house and will be moving to Suffolk end of April.. I'll be looking to move my trust's and then having Flexi camera's going forward.

    I like the normality of not being prodded, but I know I need to keep it monitored. I'm good at burying my head in the sand when it comes to being ill, which is something I shouldn't be doing with a cancer diagnosis.. 

    The lack of sleep is the worst.. hope it improves for you soon.

    Trevor 

  • Wow I hope the move goes ok mate…yeah you have to keep up with the flexi….

    it certainly takes over your life…

    we have the boxing on…

  • Thanks Nigel, took a while to get the house sale finalised.

    I was waiting to hear from my current consultant but haven't yet.. 

    Enjoy the boxing.

  • I’m multi tasking  tonight hahaha 

    even today out for lunch I had to go into the gym to use the loo…maybe chase em up…

    I’ve been very lucky that my trust have been on the ball at every step…kept me well updated on everything…we was gonna move but have decided to do this place up instead…got a new kitchen being installed next month…

    a nights sleep would be good for me…