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After Radical Cystectomy

Tony W
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Hi All,

This is my first post- I had a radical cystectomy and prostatectomy last Tursday in Castle Hill Hospital, Hull.

The surgery went very well I think, it was performed robotically and I was discharged 5 days later.

My question is a very general one - I live in Howden whi h is 22 miles from the hospital and obviously I am not allowed to drive for 6 weeks post op. I don't really know anyone in the area,  having only lived here for a few months. I have to attend outpatients every week but the hospital transport service has rejected my request for transport stating that I am too independent!!

I have had help from the ward and my stoma nurse and no one can get them to change their decision,  this means I face an £80 return taxi trip each week which I can barely afford.

Has anyone else experienced a similar issue and how did you resolve it?

Many thanks

  • Might be worth contacting your GP - they may be able to authorise transport. Alternatively ask if there is any local community transport scheme - the local council may have information. Hope you can get something sorted quickly. 

  • Hi Tony W, that is ridiculous and totally unfair. I live in a rural place and though I haven't needed to use it I know from GPs info that there is a community transport scheme. Definitely ask for support from GPs. Only other thing I can think of is could a district nurse visit you instead? Fingers crossed you get some help. Best wishes Hx

  • in reply to Teasswill

    Thanks Teasswill, I will try my GP again - they gave me the number for patient transport then left me to it, so maybe they need to step up!

  • in reply to Herothedog

    Agreed its ridiculous - I had to get a taxi home following surger and instruct the driver to take it very easy over bumps   

    I am a retired nurse and have seen transport arranged for far less than major surgery, it beggars belief

  • in reply to Tony W

    Hi Tony W,Welcome to the group.That’s outrageous I hope you can get the decision reversed.It’s major surgery and you feel so tired afterwards.Best wishes for your recovery.Jane 

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