Bcg query

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Just wanted to ask anyone who has completed the bcg maintence programme, the 27 Bcg you have, just checking that the 27 include the 6 initial plus 3 heated mytimycin are part of the 27???, I think I have now finished but will be disappointed if those are not included and I have got it wrong. 

  • Hi Bumblebee, 

    I haven't finished the 27 , but I was given a schedule by my consultant, including all the BCGs and biopsies.

    My schedule only shows a total of 27 in total including the initial 6 induction.

    Congrats by the way on doing all 27.

    Trevor 

  • Hi Trevor, thanks so much. I thought it was. Yes a big relief to get the last one (well I hope it is) on Monday. Still suffering a bit but just pleased after 3 years I have got there.

    Where are you at with yours Trevor? 

  • No worries, the schedule they gave me was very helpful, included things like the suggested gaps in between.

    I had number 18 in March, so was due to have number 19 in September, but my last biopsy in August showed Chronic Inflammation, so has been postponed.

    I'm away next week so wasn't going to have it beforehand, but I'm not 100% sure I'll be continuing for a while at least unfortunately. I feel better now, but we'll see.

    My consultant suggested a reduced amount or just having the two instillations instead of 3.... 

    Decisions decisions lol..