Follow up day. Need 6 weeks of mitomycin instillation. Brilliant

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Well the grading and everything else stays the same. 

But I now need to have the 6 weekly instillation probably starting in the next 2 weeks. 

I also will be booked for another CT scan as well. 

Anyone that can give me an info re the instillations, I know it involves a catheter and then holding it for 2 hours before evacuating. That's about all I really know about it.  

  • Hi Simc

    I had 6 last year, it was painless, after 2 hours you can go to the toilet.  If possible use a separate toilet in the house

    It is PURPLE

    I was told to put half a bottle of bleach in the bowl, then pee, then put the other half in and leave it a while before flushing

    BUT follow the instructions from the nurses it might have changed

    I had no side effects apart from slight stinging afterwards

    Feel free to ask anything else you need to know

    Much love Tina x

  • I only have one toilet but only me here cause the cat isn't toilet trained so that isn't an issue better stock up on bleach as well. 

    That's what I understand mostly from what I've read. 

    I'm not going to be happy about the catheter though I really struggled with the Flexi Cystoscopy Cry

    But I guess needs must. 

    ________________

    My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all Joy

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Hi Si

    It is very quick,  not even as long as a Flexi Cystoscopy, but worth it

    I had BC twice but I have had two clear Flexi Cystoscopies since Mitomycin

    Much Love Tina x  

  • Thanks Tina, here's hoping it helps. 

    ________________

    My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all Joy

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.