Need to vent

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I'm slightly annoyed about the whole debacle of yesterday check up and subsequent removal of more rumours. 

I understand it isn't always possible to have just one consultant all the time, but last time I spoke to Dr Shipstone he said if there was further rumours chemo would be installed after taking them out as one instillation at that time is more beneficial than a 6 week course. 

The consultant that did it this time thinks about insulation at the time would not have helped which means I'm now more like to need the 6 week course which even more time off work and loss of earnings etc. 

Why can't they all stick to the same hymn sheet and follow a course that may be beneficial to someone. 

Getting different opinions from different consultants who all specialise in cancer can be quite worrying when they can't agree on simple things. 

Again I have no idea why I had a catheter this time I didn't before and haven't had the chemo drug in this time.

I think this consultant is also the one who came and told me after my very small recurrence in January that it would change my grading level, when I asked Dr Shipstone at my follow up he said no he wouldn't have said that no reason to say that. 

I've had pretty decent experiences up until now mind, yesterday was an absolute grueller.

Ive asked for CNS team to call me back to discuss some things. 

  • Hi Simon,Good idea to get some answers from your CNS.I hope they can help.Jane x

  • Very frustrating for you. Normally there would have been an MDT meeting to recommend a course of action or choice of treatments. Having said that, things aren't always cut and dried, there can be different opinions. Hope you can get a definite plan of action soon.