Post 6 BCG

Hi Joyce,

Good to hear you've got the induction completed. It's a big step in the process. So give yourself a massive pat on the back.

The BCG process is a long road, with ups and downs during the journey for sure.

I think the only advice I can offer is if you need to reach out for support then please do. Be it with friends, family, support groups and so on. This forum and the friendly bunch helped me early day's and still do.

It does sometimes feels like you're in limbo for sure.

Just in case you meant what happens next in the process... then this will be a Flexi cystcopy or a biopsy.

Personally I'm in a really good place ATM, but took a while to get here. 

Wishing you all the best.

Trevor 

im so glad you are in a good place Trevor and thank you for replying. I am waiting for my next cystoscopy. Thank you for reminding me that at best this is a long road. Already it’s longer than some people experience as the news is full of people who  tragically die only weeks after being diagnosed.  I appreciate so much you replying. Take care x

Hi Joyce 

good to see you’ve completed your induction course I personally have not had BCG but just wanted to comment regarding going back to normal things in my experience after I finished treatment which was last year may 23rd I went back to work early June once things had settled down and I tried not to  think to heavily on the what now I found going back to my routine really helped me I find a file under keep a close eye on approach in the mind really helped me if you feel like you can be back in work then yes why not I mark on my calendar when I’m next facing some interaction with the hospital and just try and live my life best I can until that day obviously keeping a very close eye on my urine and how many visits I have a day that is all we can do 

Ste 

Aw thank you for replying and for sharing your experience. Not thinking heavily on what has happened seems good ! Wishing you all good things x

well done joyce , you got the longest treatment 6weeks over with. Trevor is right, it can feel like we are in limbo as it is a long road. I have found for me that on that road I get patches /glimpses of normal , it feels really good. something will remind me of bladder cancer and i have to go through this whole process of putting it at the back of my mind again. The first year is a bit full on with appointments and tests and treatment. now i have reached the bit where bcg is every 6 months , I am having lots of normality and sometimes totally forget I have had cancer removed. It can be a bit of an emotional rollercoaster Joyce, but you wont ever be on your own. we will be here propping each other up, through the good and bad times . take care x

I too have just finished my Induction course on 12th May. I now have my invite for cystoscopy on 12 June. Just 4 weeks later. Hopefully everything will be fine and I can move on with my next round. I'm too back at work being treated like nothings happened. The anxiety of waiting and wondering can be overwhelming, try putting it to one side or it will just eat away at you. Easier said than done I know. I'm the world's worst worrier. 

Hope things get better for you

Well done Trish finishing your induction. I hope you didnt find it too troubling. The waiting for procedures and test results can be really anxiety inducing. I found the 1st year quite full on tbh . 
Good luck with your cystoscopy and  you will be moving on to next round of 3 soon after. Take care x

Thankyou Angela . 

Wishing you good outcomes! I’m still waiting for cystoscopy date.  It’s a tricky time isn’t it?  I’ve been told it will be 2 to 3 months. Xx

I think I've been lucky with all my dates and appointments. My consultant and nurse are really accommodating too with my upcoming holiday plans. I was told it was between 6-8 weeks for cystoscopy then a further 6 weeks for next lot of treatment . So cystoscopy is 2 weeks early not sure when treatment will start again.. I'm sure it won't be too long until you get your appointment through.x