Hi all,
I am almost 4 years post op and all has been well apart from a few hiccups. The worst of which being kidney infection leading to sepsis. But hey, in the wider scheme of things I’m very pleased with my neobladder. I’ve just returned from Australia and the time difference has completely disrupted my night time routine. Does this resonate with any fellow “Neobladder Travellers”? If so, do you have any advice as to how I can regain control?
Regards
Hi Potter100 and good to hear from you again. Nice to know you are doing well in the great scheme of things and living life to the full. No experience of neo, but hopefully someone with experience will be along with some advice. Best wishes.
In my early years, I noticed that after travel across time zones, my body seemed to take a while to reset. So I was having to empty neo at odd times for a while eg twice at night instead of usual once (plus the greater risk of incontinence). Did settle back down after a few days. I have no suggestions to hasten that, other than carry on as normal as far as possible with protection against leaks! I guess Australia to UK is a pretty massive jump - hopefully you will reset soon. Good luck.
I used to wear a night pad on long haul flights. Now I'm 13 years post op, the time difference doesn't seem such a problem. I just have to keep track of intake and 'real time' to gauge when I will need to empty, in relation to likely opportunities. Don't want to risk being full just as the plane lands!
In the early years, when I was still conscious of waiting until full to empty, I got caught a few times desperate for a loo. As I have to self cath, I always take extra supplies when away, for convenience voids (as opposed to essential ones).
The other issue I find when away is the change of food - can cause extra mucus causing spasms & leaks. Or a sudden loose bowel movement. Drinking different fluids at odd times can disrupt my usual timings too. I always look out for the nearest loo, or check time until next available one. Some countries are much better than others for that!
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007