Hello fellow warriors,
Last Tuesday morning I underwent a TURBT. It was my 2nd after a 2 year old terminal diagnosis. I've been really struggling generally after the procedure. Main issues are complete lack of appetite leading to fatigue and weight loss : complete incontinence : abdominal pain : clotting leading to blockages and further incontinence.
I've read all of the supporting documentation and it all appears normal but I can't help thinking mine is extreme and it's been a week now whereas the info suggested a few days.
Just wondering what other people's experiences are. My first TURBT was nowhere near this bad.
Many thanks, Cindy
Hi Cinders73 . It can take a while to recover from a TURBT. For some it can last longer than others. The effects of the anaesthetic can linger. I felt really fatigued after my first one and my GP prescribed steroids which picked me up and gave me an appetite. There is always the possibility of an infection which can happen after a cystoscopy, so may be worthwhile getting a sample checked out. Best wishes.
Hi Cinders73,
I had my 1st on Saturday. Whilst we don't wish to be a burden, there is no reason why anyone should suffer unnecessary discomfort/pain.
Depending on where in the bladder the resection was done, I guess any pressure on that area would be painful/uncomfortable. Depending on your age we are realistically looking at a couple of weeks for healing to get going properly. Also depends on extent of area resected.
Drinking plenty of fluids is the key to preventing clots, and reducing the risk of infection. If you are using a pad make sure you change that regularly too. Personal hygeine is also key. I've always thought a 'bidet' should be part of a normal bathroom suite in the UK.
Don't be afraid to take pain relief like Paracetamol, avoid Asprin and Ibuprofen as they can make any bleeding worse. As you may have been advised, if what you pass is cloudy, or 'thicker' it may indicate you could be brewing an infection.
I guess that your GP should be aware of your situation, and current status, so talk to your surgery about possibly needing anti-biotics if you have any symptoms.
Given your diagnosis, I realise that there will be those out there who advocate 'healthy' eating to maximise what time you may have left, but if you have poor apetite, being prescribed a short course of steroids can help (often given if having a round of chemo).
Eat what you fancy! If that is just cake, chocolate or ice cream who cares! I would suggest that anything is better than nothing.
You take care, and I hope you start feeling a bit better soon. Xx
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