Awaiting Flexibile cystoscopy

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Morning everyone - I hope this post is ok. 

im really scared and struggling to deal with the anxiety of what is going on and in desperate need of some help.

l am 36 who is generally fit and well but whilst masturbating I found blood in my pre-semen (before ejaculation). There was some small traces after this of blood at the beginning of my urine but this stopped three days later completely. A&zero originally thought trauma injury.

my prostate has a calcification on it but PSA normal. I had a private ultrasound which showed no abnormalities and normal bladder flow.

i have experienced some other symptoms since discovering this, slight burning, tender tubes & on off pain in lower back although the burning and tender tubes have started to calm down. I have used google and it’s really got me panicking.

I am so scared that something serious is really wrong, I have nobody to speak to about it and it’s impacting my ability to eat & sleep as it’s constantly on my mind.

i can’t get my procedure until Friday and I’m desperate for some help. I hoped the ultrasound was reassurance but the more I read about this the less reliable it is. 

if anyone can offer any advice it would be much appreciated.

kind regards- S

  • Morning S, sorry to hear about your problems and worries. I can’t offer any remedial help but perhaps someone on this forum has some advice from their experiences. What does your GP think? I hope everything goes well on Friday. Garviv

  • Hi SteveJ , welcome to this friendly forum. I can understand you anxiety , the “what ifs “ taking hold and causing you distress. I think we have all been there while waiting for a diagnosis. My first bit of advice is to stay off Dr Google, most of the information is unreliable and out of date. If you need to research use trusted websites like macmillan or NHS. I know it seems obvious , but you will feel more in control once you have had the flexi and know what you are dealing with. What has your GP said to you ? please stay with the forum and we can try and steady you through the waiting. 

    Much love Angela x

  • Thank you for both replying. My urologist thinks it’s very unlikely there is a serious issue but I’m still worried never the less. 

    it’s the wait between now and the procedure that is really bothering me. I wish it was quicker and then I would know. 

    it’s currently dominating everything in my life and I can’t get it out of my mind. 

    I really appreciate these responses. I am weak minded! 

    steve 

  • Hi Steve,Welcome to the group.Stay off google if possible as it will make your anxiety worse.If you can keep busy until the cystoscopy that should help.Not too long to wait although it feels like ages when you are worried.The cystoscopy won’t take long to do.Let us know how you get on.Best wishes Jane x

  • Hi Steve, really try and be kind to yourself, you are not weak minded. It is quite normal to feel anxiety. I think everyone on here has felt panic at some point. For me I practice mindfulness and meditation to keep my anxiety under control. It doesnt eliminate it, but it really helps . It wont be long now, try and make a list of jobs that need doing around the home /garden, all the stuff you have been putting off , and do something everyday.  You will deal with this steve, and we are here to help you .

    Much love Angela x

  • Hello S. Good luck for Friday.  I remember years ago at friend of mine had blood in his semen. It really turned out OK. Glad they are looking into blood in urine.  So many of the men on this forum will help you.  Please keep asking questions as its the only way to learn & you acting completely normal. Anything that comes from your body that shouldn't must be investigated.  

    Wish you well xx

    Kimdav

  • Hi Steve, what you are feeling is not weakness. We have all experienced the kind of worries you describe.xx But remember we are only able to reassure you because we've come through the other side in one way or another. The main thing I've learned from having cancer is to value every day. Though it is hard I try not to invest my energy in anxious "what ifs" but focus on any scrap of joy today. As this group will know this frequently means the distraction of a slice of delicious cake, or like this evening raising a  glass of wine to toast another group member's wonderful "all clear" this week (cheers Rily). Worrying only exhausts you. Watch rubbish tele, eat something good even if it's naughty, go for a country walk. Distract. Distract. Only 6 days to go. Best wishes Hx 

  • Thanks all, how don’t know how to cope with the stress. My wife doesn’t understand the impact and thinks everything will be ok but I’ve got every symptom under the sun. The only reassurance I have is the ultrasound being all clear but these can be unreliable from what I’ve read. Is it worth speaking to the helpline on here? It’s coping mechanisms I need and I honestly don’t know how I would react if if get bad news on friday

  • I would phone Macmillan as they are helpful and can offer support.

  • Definitely call the helpline Steve J. It's their job to help. Hx