It's been a long time since I first posted, when I had my diagnosis, back in November last year, They found something odd when removing a kidney stone. Turned out to be bladder cancer and it was at the point where the only option way bladder removal (and prostate).
I got a lot of comfort from the messages from you guys. You were right, it's not that big of a deal, you get used to peeing in a bag very quickly. Thanks to you to all of you for your support and advice.
Turns out they tested my prostate and it had cancer too. Oh well, they took that out too so that's good. I do have ED as a result and I'm ok with that but it's just weird if you know what I mean. And if it affect you too I'd up for a discussion about it. I'm not looking for babies, I just find find it odd that I have a now useless organ.
I recovered from the operation quite quickly but had an infection around the surgery site so was stuck there longer and they would not let me out until I had a poo. When it did happen it was... well.. explosive. I was in pain afterwards and and still am. I love the NHS but I've been bed bound since my operation due to this issue. The stoma nurses have been AMAZING, they have pushed and pushed to get me an appointment. But they keep getting cancelled. But they have been amazing. I got a hernia around my stoma (I'm fat) and ask them to take a look, they booked me in fast and took a look. These women have been incredible and I wish I could name them because they deserve praise.
Anyhoo, being bet bound since Feb has been a big challenge. I work from home so I can 'sort of' work. but typing from an prone position is difficult.
So life has been a challenge, but what I really wanted to highlight is how much I appreciate the support and advice from you guys, and if anyone new who is going thought any of this, if you are reading this, then you are in the right place for support.
Thank you everyone here, you are amazing for helping me through this difficult time.
Hi MagicMirror . A great post. Good to know you have adapted well and this will give encouragement to those heading in the same direction. Wishing you well going forward.
Hi MagicMirror
I occasionally have bag leaking problems but have found there is always a reason for them. Could be the product, excess liquid drinking etc etc. Can you pinpoint when it happens for you? When I had this for a week straight a couple of years ago I changed my products and added extra adhesion and this changed it for me. Life is definitely challenging for you and I’m sorry to read that. I’m not bed bound, but I am now disabled so appreciate how that can be.
Sarah xx
