going on holiday wearing a urostomy bag

Well done.sounds like you have managed your urostomy bag really well and are looking forward to your next holiday. I have been receiving treatment for bladder cancer for five years with chemotherapy, radiotherapy and BCG and therefore, thankfully still retain my bladder. I hope you don’t mind me asking but who do you use for your travel insurance? Garviv

When I first went on holiday because I went through tui.the travel agents they asked a series of mandatory questions about medical conditions regarding me and because I wanted to use there travel insurance I had to ring them direct to explain my position..the general view was that with most travel insurances they won't cover for cancer related conditions or injury but will cover for anything else..my condition is a bit different from yours as I am not receiving any treatment now but just being monitored every six months for 5 years to check for any reoccurrence anywhere else on my body..hope this helps

Hi kinhellmick 

It’s great to read of your positive experience on holiday. You may want to post this on the Stoma Support group to give encouragement to others.

Stoma Support Group

There are people like myself who have stomas but didn’t have bladder cancer or rectal cancer, and the topic of holidays comes up regularly so more people might read your post there. 

You might also consider having a look through the insurance group for people with cancer

Travel insurance Forum

I don’t use the travel agent insurance but as a community champ I’m not able to recommend a particular company. However, there are lots of recommendations from others on there.

Here’s to many more holidays!

Sarah xx

Thank you

Since my diagnosis & cystectomy, I have used insurancewith.com & once, their sister company getgoing. You have to fill in a questionnaire to get existing conditions covered. The excess has reduced over the years I have been clear. I prefer to have the cover as I use catheters & would be a big problem if eg lost/stolen in transit. We also declare more minor conditions like high blood pressure. 

Makes me think it's time to plan a holiday!

I take my supplies in my hand luggage so they are always with me. I can get an extra free bag for medical supplies to take as cabin baggage with my usual airline. I have an absolute dread of my case going missing so this gives me peace of mind.

Sarah xx

Thanks Teasswill, I will investigate their site tonight. Garviv