Hi there My husband has been diagnosed with bladder cancer for about 10 months now. He's had radiotherapy which was unsuccessful. He is 81 and his cancer has spread so he is not a candidate for chemoor Immuno Therapy. He has just come out of hospital after having a kidney infection which resulted in him having a second nephromostomy bag. We are currently getting up twice in the night to empty the bags, particularly the right bag. I have been on Amazon and other sites looking to buy night bags which we can connect to the day bag so that it will drain into the larger (I believe 2L) and he can get some much needed undisturbed sleep. The problem I have is I don't know what bags I should be ordering. For example I saw UGO drainage bags but they talk about ordering the one with the correct connection. I don't know what connection we need. The District Nurses change his leg bags once a week and the bags used are MERIT DRAINAGE DEPOT which have a screw tap. Is there anyone that would be able to tell me which bags are the ones to buy. I feel stumped when they all refer to catheter bags and I'm not sure whether these are interchangeable. Many thanks.
Hi PennyB and welcome to the group although sorry to hear of your husband's situation. I can't help with your question, but while you wait for someone who may have experience of this, could I suggest you also post in the Kidney Group where someone there may be able to offer advice. Best wishes.
Hi PennyB
I’m sorry to see the difficulties you are having with this. I use a night bag with my urostomy and they are indeed 2l, but my tubing and connectors would be different to the nephrostomy bags so I can’t advise on what’s required. It must be exhausting having to get up in the night to empty bags.
Can your district nurse help with any advice on night bags if the hospital is not helpful? I would agree with Jane that these bags should be provided for your husband and not something you should have to pay for. All stoma supplies are provided free in the nhs, and that includes night bags. The nurses at the hospital should have given adequate supplies on discharge and advised of how to obtain more.
I hope you can get this resolved and get some good nights’ sleep for you both.
Sarah xx
