Cystoscopy shock and concerned

Hi Spargo, it certainly sounds like a TURBT .

You mention  'cauliflower' as a description. It's how my husband described the whole of his bladder as 'looking like inside out cauliflower' having seen it himself on the initial cystoscopy. Never heard it called a stone before though.

Especially as you have had a UTI, be sure to keep drinking plenty. My old GP recommended Robinson's Lemon Barley Water, properly diluted. [Not the "fruit'n" stuff]. I think it's the natural potassium content or something, but as with cranberry juice or tablets, it helps wash away bugs. Also much easier for many of us to drink than plain water.

And after your procedure you could wake up with a catheter in, and be let go home only on condition of having managed to pee normally after they take the catheter out. [Sometimes the procedure causes a bit of bruising/swelling in the urethra or as my husband's consultant insists on calling it, 'water pipe' so this is why]. Taking whatever painkillers are offered is the best bet.

Best plan is to make sure you have things to do to keep busy afterwards, but avoid heavy lifting/heavy exercise for a couple of weeks. It often takes a coupe of weeks for the lab to grow the biopsied cells enough to analyse what they are, and put this into an MDT =Multi Disciplinary Meeting. At the MDT all the various doctors/experts discuss each person's case and decide a treatment plan or choice of treatment plans. Waiting to be told this is trying for many people hence distraction is positive. And likely you could pass a scab or several a couple of weeks after. Scraping away the offending polyp likely leaves a wound but you can't see it so you have to remember it's there healing.

Hope this is all some help, 

Denby

Hi Spargo and welcome to the group although sorry to hear your cystoscopy results. Firstly be aware that if it does turn out to be bladder cancer, then BC can be treated successfully. A TURBT (trans urethral resection of bladder tumour) procedure is fairly straightforward in the great scheme of things. Usually done in day surgery, but prepare for an overnight just in case. The offending cells will be scraped away and sent for analysis. A few weeks wait for results which will determine where you go from there. The days of uncertainty and not knowing can be worrying and we all understand. Feel free to ask any questions as many of us have been there. Best wishes.

Thank you for your prompt reply. I saw the “cauliflower” I could only see the one, tbe consultant did say stone but after doing my research, it seems to be a polyp,

thank you i am worried that i am overthinking xx

Thank you yes will be a few weeks of feeling anxious can i please ask if it is a Turbt how much time off work do I need? As I have only booked the Friday the day of the surgery and the following Monday off. Is that enough?

Overthinking is easy to fall into Spargo. It's probably best to keep off 'Dr Google'! If you want it call Macmillan for a free copy of their booklet on bc, we found it very useful at the beginning. The big thing to bear in mind at the moment is what rily says, that it is except for a few, a very very treatable cancer even though it tends to recur. Very very treatable remember!

Your new message just popped up. My husband was already retired but we never missed a day of minding baby/toddler grandson [he's nearly seven now]. others may advise but it depends a lot on what your job is. Macmillan helpline should be able to give you sound advice on dealing with employers and your rights

Denby

Thank you so much 

Bound to overthink, we all do waiting for a TURBT, it's a worrying time. But in my experience it's an easy procedure and good to know that anything lurking about will be removed. Sending you best wishes.

Thank you so much Can i keep in touch with you all please? 

Of course you can Spargo. That's what this forum is about, supporting one another.

Denby

Always welcome post whenever it would help Spargo. I've learnt so much from shared experiences in this group. Helped to de-mystify a scary process. Be prepared for a wait after the TURBT while they biopsy anything they find. Usually about 2 weeks and then if you are NHS expect a meet with your consultant to discuss next steps. Keep us posted on your progress. Fingers crossed H x