After completing my BCG treatment last November, I still have bladder inflamation confirmed by the last cystoscopy a week ago.
Although I drink very little after about 8pm, and empty my bladder before retiring, I am still producing a litre or more through the night in 4 to 6 toilet visits.
I do take small sips of water each time (amounting to about a quarter of a litre) as I suffer from very dry mouth (only at night) which doctors don't have an answer or cure for.
I can't understand where all this extra fluid comes from though. Does anyone have an answer?
I am 81 years old
Jackaroo
Hi jackaroo . I believe the technical term is Nocturia, but can't offer much help sorry, other than the usual avoiding diuretics such as coffee. I hope the inflammation clears so you can have a decent sleep. Best wishes.
Hi Jackaroo, don't forget that your clever bowel is busy sucking the water out of the sloppy contents in order to produce a stool rather than diarrhoea. This goes on long after you ate. I notice myself, if I have a supper with a lot of veg or salad I will be more likely to wake at night.
Ref the dry mouth, three things. You can buy or get prescribed, Biotene gel or spray. Many medications cause dry mouth, if your pharmacist confirms this applies to anything you take, you have a good case for the products on prescription.
Most toothpaste is full of highly toxic fluoride. You may have less dry mouth trouble if you switch to a much gentler fluoride free one. Good dental hygiene for most people does not require fluoride.
Dry air in the bedroom won't help, I always hang a wet flannel on top of the towel on the towel rail we have by the basin in the corner of the bedroom. Or you can get the water containers [humidifiers] that hang on a radiator.
Hope this goes some way to explaining and ideas to help.
Denby
Thanks for that advice Denby, I will certainly act upon it. It is rather disappointing that all the doctors I have asked about it, do not seem to be interested. I guess because, unless you have experienced it, it seems somewhat trivial?
I have been plagued by this for many years and long before the toilet visits problem which only started after my bladder treatment.
I do appreciate your advice.
Jackaroo
Hi Jackaroo, pleased to help.
My late Mum had dry mouth trouble, which was related to her Parkinson's meds. That's how I came across Biotene. It is important for your teeth to use this as the saliva naturally mends your tooth enamel. [daughter is a dentist...]. Biotene has minerals to copy the natural saliva's action to safeguard your teeth. Any Dr prescribing mouth-drying meds ought to know this and prescribe the Biotene. But they don't do so.
One thing that could be key which I forgot, is if, and if so why, you may be sleeping with your mouth open. Ie is your nose blocked, did you ever take a hard knock on it which could have left you with a 'deviated septum' [division between nostrils go buckled and stayed that way]? If you snore, it often helps to lose at least some of any excess weight though that is easier said than done.
Re avoiding bladder irritants, never ever limit your water intake, as the more concentrated the urine, the more irritant it is. Some people find that citrus fruits in any form, &/or tomatoes, &/or onions, or certain chemical preservatives found eg in soft drinks, can be irritant. Not that you have to live without the culprit if you can identify it, but it may be helpful to keep them to no later than lunchtime. That was my friend's experience with two children who were still wetting the bed when aged ten plus. No orange drink after lunch and they were ok.
More food for thought!
Regards, Denby
The gel is easy, squeeze a blob on a clean fingertip and spread around your mouth. Also compact and portable to pack if you're travelling. The spray [bulky can] made my poor mum jump out of her skin. I'd got one as her dexterity was gone due to the Parkinson's and I didn't want to be poking round in her mouth for her. So she had to do her best with the gel.
happy trying,
Denby
Hi again Denny and Rily,
I have at last obtained a tube of Biotene and tried it for 3 nights so far. Unfortunately it hasn’t made much difference to my dry mouth at night problem but I’ll keep trying.
I find that it gives me a lot of saliva initially but I automatically have to keep swallowing which obviously dilutes the affect it must have afterwards!
As I can’t avoid swallowing I don’t know what the answer is?
Thanks anyway
Jackaroo
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