Found this discussion group by accident after searching for BC and just wanted to share my experience so far. I have had kidney stones since the beginning of the year and always associated blood in urine with the stones, all blood tests were normal. However I was sent for an Ultrasound which revealed two solid lesions in the bladder both showing calcified content (whatever that may mean). The largest lesion measured 2.3cm and the smaller one 1.6cm diameter. All a bit of a shock as I have always been fit and healthy with no major risk factors. Have now had a cystoscopy which showed a suspicious growth almost certainly cancer. Awaiting CT scan and TURBT. Not sure if there is any connection between the kidney stones and BC and whether it was fortunate to have a Ultrasound for another reason which identified the lesions. Any comments on the size of the lesions would be appreciated, I think these are considered to be small which I assume indicates that it has been caught early and less chance of the cancer spreading.
Hi, just passing by so stopped to say welcome. I think it is the sneaky feature of cancer that patients can seem perfectly fit & well until the disease has got quite advanced. Many of us have been in a similar position. But if caught early, BC is very treatable.
Unfortunately size of tumour is not an indicator of grade ( how aggressively the cells are multiplying. ) You will have to wait until the tissue taken at the TURBT has been assessed by Pathology dept. The results (including CT scan) will likely be discussed by a MultiDisciplinary Team (MDT) to recommend appropriate treatment. We are all familiar with the anxious wait for results. Expect 2 - 4 weeks after TURBT before getting the results & knowing what options there are. Hope all goes well.
Hello Modena20 and welcome to this friendly group, although I am sure you would rather not be here. We know how you must be feeling as many of us have been there. The uncertainty and not knowing can be scary, but be aware bladder cancer can be treated successfully. BC is not usually associated with kidney stones, but you never know. Everyone is different. The CT scan is standard procedure, just to rule anything else out elsewhere and give them a bigger picture of what they are dealing with. Lots of experience here so feel free to ask anything. Best wishes.
Hi Modena20, glad you've found our group, always better when you realise you're not alone x I have no experience of kidney stones but I had many experiences of blood in urine which over 3 years my GPs neglected to recognise as BC. This is not unusual in women where doctors frequently seem to think the blood must be gynae linked. Eventually I got a scan which showed a bladder tumour (9cm!) Luckily it was growing on a stalk so the actual contact area with bladder was minimal. But it was a stage 1 tumour, meaning it had started to grow through the lamia propria (connective tissue) though not into the muscle wall which would make the chances of spread more likely. You were really lucky to have the lesions spotted sooner rather than later. Once you have your TURBT, you will be told the Stage and Grade of your tumours, and what treatment your medical team recommend. You will find others who have a similar experience whatever your results and we are all happy to share our treatment experience. Good luck and keep us posted? Love H
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