Bladder cancer

Hi KimDav,

             I wouldn't say you're over reacting at all. This stuff can be scary. It's good you've posted your fears. We all have them and it is better to get them out for people to help you rather than keep it all inside worrying worrying.

Bless your husband for being so positive. And if the Oncologist says it's 'not enough to worry about' then i would take that as a positive. Though it would be in the back of mind.

To satisfy yourself is there anyway you could phone Oncologist ?   Or nurse ? And say how worried YOU are. Maybe she could explain better to you and calm your fears. 

Fingers crossed for you....Del.

Hi KimDav, so reasonable to feel anxious, as Deloo said this is a scary business. I sometimes think this experience is harder on our loved-ones than it is on us patients. I've found the medics are very careful with what they say, if your oncologist said not to worry I'd find that totally reassuring. Otherwise I recon they'd have your husband back in for further tests really quick. My only advice is try to enjoy every single day and treat your selves to any small pleasures that make your heart sing. In my case I got a labrador puppy two years in to my BCG treatment. At this moment he (now a fully-grown 3 year old) is lying on sofa next to me with his head in my lap. Walking my dog in the beautiful Exmoor countryside helped me feel joy in my life again. Sending love H x

Absolutely nothing like a young animal, especially a dog. May you have many walks, runs, ball throwing. Such joy xxx

Thanks Del. We do have our oncology nurse. Who is wonderful . They are doing another CT/PET on 4th November. I feel better after posting, just to get it out, at mo I feel I could wait to see what November scan says but if not, I will call his oncology nurse. Thanks for reading. Good luck to you xxx

Excellent. Now you know that it helps, if only a little, to post your worries. It's a valuable resource that it so handy to have in your back pocket. The up and downs of all our journeys are made just a little more bearable by knowing that so many people, though miles apart, have had or are having a similar journey and dealing with similar difficulties.

Cheers for now..Del.

Thankyou. Del xx

Yes, we have heard, something in the groin area, also the thorax. We are seeing his surgeon on Thursday.  His oncologist said it is suspicious??? However not a lot to do before November & CT/PET scan. What does it mean when they say area in the groin suspicious also nodes in your mediastinum which are likely to be re-active?  I will ask surgeon on Thursday but wondered if anyone had any knowledge x

Hi Kindly

This is exactly why we have this forum. No question needs to remain unanswered.  Wishing your husband well and you too

Love Inanna x 

Thankyou ️  you did make me laugh 

Hi

Not over reaction at all, it's normal to think there is something else when you're there's nothing to worry about, it gets the worry cans rattling. If your very worried you try speaking to your husband's nurse. Mine are always helpful and reliable, or you could try talking to one of the Online Nurses, again, very supportive. 

I would take the Consultant's words as positive. It is always very nervy and scarey in the early days, so don't be a stranger.