Hi there had my 17th bcg on Friday 17/06 only light bleeding which cleared up that evening nothing on Saturday but this afternoon 19/06 blood in urine again, this has never happened before so a little concerned.next Friday due another bcg should i wait and tell them at that appointment or let them know now, really not sure if this has happened to others so might be one of those things or its come back again. grade 3 T1 when diagnosed. Feel better just writing this thanks for any responce
Hi ginisdad and welcome to the group. I had a different treatment, but being here for a long time, we know slight bleeding is not unusual, especially as the treatment goes on. Saying that, it is always worth while giving the unit a ring to for some reassurance. I the meantime, keep drinking plenty of water to keep things fresh and flushed out. Something we are always advised to do. Best wishes.
Hi ginisdad, I had full 27 dose BCG protocol over three years (2017-21). In my understanding side effects are generally cumulative. I was encouraged to phone my CNS at the hospital urology department in working hours, if I had any worries. A phone call might save you a journey if they could say rest bladder for a week? If they decide to post phone the next dose to let things calm down, I don't think it matters. I had longer gaps between some treatments for various reasons, and medics had no concerns. I guess you are having 3 monthly cystoscopies? I am currently NED.Good luck. Hx
thanks for replies yes having regular cystopies next one should be 3 months from now but nurse ordered one for 6 weeks time so i know i am getting good care, blood in urine has always stopped day after bcg so starting to bleed again 2 days later freaked me out a bit will give them a call tomorrow sure it will be ok
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007