Oops!

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Hello and greetings from a bright but very windy Walton Le Dale. Well the technical issues I believe have been resolved mmmm! I have been able to read all the blogs in the Bladder Cancer forum but not been able to reply or post new blogs. Following my rigid cystoscopy on April 11th where biopsies were taken and stricture removal in urethra I was given a telephone appointment date for yesterday. The consultants assistant rang me as arranged and informed me that my appointment had changed to a “face to face” and could I go and meets the consultant immediately at the Hospital Urology suite. Mmm, I thought , this does not sound like good news. I got to see the consultant an hour later as soon as I arrived. He was very pleasant if a tad too efficient. He told me I still had a superficial tumour but it was non invasive. I was given two choices a six week course of Mitomycin direct in to my bladder or total bladder removal. I start my  six week chemotherapy course on the 24th May then a two months rest before a further rigid cystoscopy to see if the chemo has worked. If not prepare for Radical Cystoscopy! Fingers crossed.

Today after a gentle stroll with the chocolate Labrador and a quick Nine holes of golf I had an appointment with the nurse at the Urology Department at a different hospital for tuition of self dilation to urethra. When the Nurse got the long, very long catheters out of the box my knees nearly buckled. However, it was surprising how easy the catheter entered my water pipe and finally my bladder. I have to self dilate twice weekly now. Anyone had similar Mitomycin treatment? Was it successful? Nice to be back. Garviv

  • Yes and yes Garviv.

    Interesting about the self cath to combat strictures, my OH was supposed to do this 'monthly' from the hosp who did what I'd now call a TURBT many years ago but never said that what they took out was cancer. Just that it was 'seaweed like growths and there were more than we thought' as explanation for discharging him next day in agony catheter in situ which we had not been warned of and bleeding profusely through it... the joys of ignorance...Of course he got out of the habit and new hosp had to fight their way in thru the stricture but they seem to manage..He tried to get back to it but the GPs/local pharmacy simply could not obtain ANY correct size catheters.

    Denby