TTC plus plasmacytoid

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Hi everyone

i am new to this group. My dad has just been diagnosed with transitional cell carcinoma with plasmacytoid. We also just found out that it has spread to his bowel and are awaiting the MRI on Monday to confirm how it got there (direct growth of Tumour from bladder or traveled there). Not sure what the treatment plan will be yet.

there isn’t much information about on plasmacytoid. It appears to be a rare/unpredictable/aggressive form and I was wondering if anyone has had any experience of this?

whilst we are waiting of final tests etc my focus is on my dad symptoms. He is constantly needing to go to the toilet (more for bowel than bladder at this point), he’s completely bagged up, getting no sleep and last night he was sick after a small bowl of soup. He only has laxido sachets to help and they’re not doing anything. There must be something that can be done to help relieve his symptoms. He’s barely slept in 3 weeks and is barely eating now. He’s only 60 and my mum just doesn’t know what to do to help (also barely slept for the last three weeks). I’m trying to find a way to help and hoping this group could give me some tips and advice/things I could be asking the doctor for to help him.

Any guidance would be greatly appreciated.

  • Hi Jenall, really glad you found your way to this group since between us have had a wide range of bladder tumours and treatments. We totally understand that this initial time after diagnosis is terrifying. x  You must all be so worried about your dad. I don't have knowledge or experience to answer your questions but hopefully someone else will come along soon who can help. When you were given the cancer diagnosis did your dad get introduced to his Clinical Nurse Specialist? These nurses are expert in their field and generally more accessible than the consultants. If yes I would seek symptom support there. I can phone my CNS direct at my hospital urology dept any weekday  9-5. Otherwise I'd suggest you make contact with his GP practice and ensure they are fully aware of your dad's diagnosis and symptoms. There may be some meds that can help while he waits for treatment. Sending you hugs at this hard time H x

  • Hi Jenall,Welcome to this friendly group.I’m so sorry to hear your dad is suffering so much.I think you do need some medical advice especially if your dad is vomiting in addition to the bowel problems.Best wishes Jane