Hi all, I have been following this forum for many weeks now which I have found to be of great comfort. I am truly sorry to read all of your unuique experiences.
My dear 75 year old Mum recently received her biopsy results which we had been told to prepare for the worst as the mass was showing to be a around 13cm. Luckily they were able to remove most of it apart from the routes which have set into her bladder muscle.
We have an appointment with her urologist this coming Thursday where they will discuss the result and her options. They also said in the same letter that they will make a further appointment to test her kidney function which i am taking as a positive that treatment or complete bladder removal could be an option. The problem is her kidneys were only functioning at 8%when she was rushed to hospital and it took absolutely weeks to build these up before they could do scans. I fear they are not going to be up to strength as she’s not taking medical advice and walking back and fore to the toilet as much as she’s feeling constantly tired and sick.
I don’t know how to help or mainly encourage her without sounding like I am bossing her. We are all now very ratty with each other. My sister runs after her and then when I’m about I try to motivate her but each of us thinks we know best.
Any advice or experience would be greatly appreciated.
christine
Hi Christine and welcome to the group, although sorry to hear about Mum. Muscle invasive bladder cancer can be treated successfully and many of us are hear to tell the tale. I am sure you will know more when Mum sees an oncologist. We also know how much of a difficult time it can be for family and loved ones. People find it hard to know what to do. I'm sure your sister is trying to do her best, but sometimes this can cause conflict. I hope you can work things out . Best wishes.
Hi Christine, it is fortunate that for bladder cancer there are a wide range of treatment options, just one of which is bladder removal. When your mum meets with her consultant they will give a clear description of her options on the basis of the urology team's discussions. Hopefully she will also be introduced to her Clinical Nurse Specialist, whose job it is to ensure your mum is supported and each step of her treatment goes smoothly. Mine is an absolute wonder woman who has really helped when I had problems. I'm sorry your mum is feeling so poorly, it's exhausting to constantly need the loo ... could her GP be involved in treating her current symptoms, otherwise her CNS nurse should help I reckon. It is so sensitive of you that you want to be conscious to avoid "bossing" your mum. I am a 75 year old woman and the older and thus naturally more vulnerable I get, the more easily I can feel steamrollered by well-meaning loved ones. As I grow older I am conscious of my reduced vigour but I still want to have control over my own life. Hope you and your sister can support each other at this hard time. Sending love Hx
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