Hi all, like to give you a bit of history how I was diagnosed. Last year I unfortunately cought COVID and was rushed to hospital, as I was vomiting blood and very poorly. That was after I had both vaccines of astro. I was in hospital for three weeks. During this time I started to loose weight and a lot of blood so much I needed numerous blood transfusions. After I as the doctors said I was stable, I was discharged. A week later I was in so much pain and losing so much blood my partner called for an ambulance. After numerous tests in hospital and ultrasound the women was concerned about a shadow in my bladder and sent me to another department. While here I had a camera inserted which was very painful and they found an abnormal mass in my bladder their words. And was told not to worry. The doctors said the mass was as big as my bladder. After this they discharged me and I had to wait a month in total fear and pain before an appointment for a turbt. They also took a biopsy for what grade of cancer. Which I had to wait two weeks. Turned out to be grade 1. I had a further two turbt to remove the tumour over a period of three months. Third time my surgeon said third time luck hey! After the third turbt and removing all of the tumor, my consultant said I would need chemotherapy to stop the tumour returning which I am waiting for now. I have since had to have further camera s inserted into my rectum as I am bleeding here to, I'm just hoping it's not connected. I'm finding it hard to concentrate on day to day activities and my partner is also finding it tough, and we always arguing about the silliest things not sure are relationship will survive. Sorry for being so down.
Hi Lawrence. They put us through many indignities, so there is little we cannot talk about here. We understand. We know that treatment does have a bearing on family members and can cause difficulties with relationships. The trauma the body goes through does have a big impact on libido. Treatment takes a toll on energy and at the same time has an effect on emotions. It does take time. Hopefully your partner will understand. Best wishes.
Hi Lawrence, as wife of a bladder cancer patient I hope my comments will be useful. I would say that the Andrology Clinic have been a tremendous help to us both, in sorting out ED [erectile dysfunction] for my husband. We were seen together several times by an absolutely lovely understanding male counsellor/expert, not wearing a whlte coat. Of course if you fear you will be unable to 'perform' it can take away the desire I guess. So, as there can be a lengthy waiting list to get seen by such a clinic, I would indeed as your partner says see your doctor, and ask them for referral to Andrology. Feel free to show her this reply, I hope it will be of help.
Denby
I'm not surprised you have lost libido with all you are going through. Perhaps it's worth being clear that it doesn't mean you love your partner less. Maybe you can find other ways to enjoy a physical relationship that will keep your partner happy. I suspect your partner needs information & support to be able to support you - I must admit doesn't sound especially sympathetic if complaining about lack of sex. Best wishes.
Hi Denby,
I feel you have just given me and my hubby a bit of hope with your response. I do have a question for you. Has your husband had his prostate removed? My hubby has and as a consequence has ED as well as night time incontinence. He wears pads for bed and it's one year since surgery. Does any of this align with your husbands experience?
Hi Colli, no he still has his prostate though with the common enlargement. He gets up several times a night but we manage to live with that and now we have our self-designed bedroom and en-suite in what was the double garage, it's a very short trip. He does wear tena men pants daytime as can be caught short randomly as much bowel as bladder when out and about. Under one of the car seats there is a man-sponge-bag with a spare and a plastic carrier for disposal in case, though seldom needed.
He still has his bladder too, Best wishes,
Denby
Lawrence, I am 4 months after my radical cysectomy. (Stage 4) We have been through our crying & my wife has had severe mental issues with this. My sexual interest is returning & II have found that I can manually climax, even remaining soft. My Prostate was removed & the nerve ending cut to my penis. I am working through pills at the moment - viagra had no effect at all. It remains an issue for my wife, although she is happy I am interested, she wants penetration, which I am unable to do. She found some place in Australia that does an operation to provide an erection , but I'm not happy with further invasive procedures. I'm not sure where this will end up exactly, but I hope she will get used to a new normal.
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