My husband, who was diagnosed with BC last June, is frequently getting UTIs. He's been told that it's probably due to him having to self-catherise as his bladder is not emptying properly. He's been doing this since September - twice a day. He had 2 tumours removed in June, a second look in July and has so far had two rounds of BCG - one of 6 and one of 3. His next cystoscopy is due end of next week and more BCG will follow after that.
Owing to the number of infections he's been getting we've now got urine testing sticks which we bought online. So every time he suspects an infection he can do a test and phone the GP to get antibiotics. He's currently on infection number 6 or 7 and back on the antibiotics so he's ready for the cystoscopy next week. This is despite taking all hygiene precautions he can.
Not wanting to moan but our GP surgery have been asking for a sample each time so they can send it off to be tested. Our hospital had given my husband a bundle of sample bottles las time he had treatment but he got down to the last one so asked the surgery for another bottle. This was refused (NHS no longer supply them apparently) and he was directed to the pharmacy next door. Who said yes of course that'll be £1 each!
Should someone with cancer be having to buy sample bottles to provide a requested urine sample? I've looked online and you can buy them cheaper but it's the principle. I've been advised by a friend to send the next sample in the biggest empty bottle I can find. Currently working my way through the gin. Will be asking the hospital for a few more bottles next week (sample bottles, not gin) but you have to laugh.
Hi Ducatidave. I also have my own strips and check my water now and then. They can be bought online, but make sure it is from a reputable supplier as there are many fakes out there. They are only an indication and do not rely fully on them, but they can give indications of anything unusual such as infection or blood. If I ever see anything not right, I will pass a sample in to the GP for testing. Best wishes.
Hi Ducatidave,The urine testing strips are worth getting if you are prone to infections.A positive reaction to nitrates is a good indication that bacteria are present but leukocytes can also show up.As rily has said if anything shows on the strip get a sample sent to the lab for testing.Some doctors give out broad spectrum antibiotics and if you don’t know the specific bacteria you have they might not work.It’s no fun to be stuck on the wrong antibiotics and then have to start new ones.Best wishes Jane
Hi Denby - i do have some empty jam jars with screw on lids but currently we have to post samples into a box outside our surgery and the hole only accomodates the proper sample bottles. Our surgery is still not letting anyone in! We've tried the lemon barley, bio yogurts etc but the infections still keep coming back.
It's taken us several months to get his prescriptions sorted out. Eventually had a discussion with one of the (very unhelpful) reception team about why he required catheter supplies and how many he needed in a month. They seemed unable to grasp the fact that he needed 60 to enable him to use a cath twice a day for a month! I was on the point of lodging a formal complaint but at new year they seem to have turned over a new leaf. A bit wary of complaining actually in case they strike us off.
I bought the first ones on Amazon but the next lot on Ebay - a tub of 50 was around £7 or £8 I think. My husband is using them 2 or 3 times a week just to keep an eye on things, but he knows from the colour/cloudiness of his urine when he has an infection. The surgery have upped their game a bit since new year and have been sending samples for testing. On his last infection they actually phoned him to say he needed different antibiotics which did the trick. But a week later it was back again. He hasn't seen anyone at the surgery since his diagnosis and only ever gets telephone calls when he phones to speak to someone. Never from a doctor though!
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