Recently diagnosed and told I could have as little as a year

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I have been recently diagnosed with bladder cancer that has spread to kidney,lymph nodes and probably liver. When asked how long I have, the dr said it could be as little as a year. Am feeling scared, worried, very sad and angry sometimes. Have an adult son who knows most of what is going on but I cannot tell him it could only be a year.

  • Hi JaneW,A warm welcome to this friendly and supportive group.I am so sorry that your cancer has spread.Do you have supportive family and friends ? You are probably still in shock,it is such a huge thing to take in.There is always someone to talk to at Macmillan and we are all here for you on this board.Best wishes Jane

  • I can't imagine how I would feel hearing that news, but I think it is an instinct to protect our loved ones. You should talk to your son as soon as you feel able, though I know it will not be an easy conversation. Better that than him have the shock when it is too late to make the most of time left to you. Very best wishes. We are all here if you need to come & vent feelings or just have a chat.

  • Thanks for your kind words - yes I am very lucky to have supportive friends and family. It is a massive shock and it hasn’t really sunk in yet !

  • Hi JaneW, are you aware there is a special MacMillan group for people whose life is being shortened by their cancer? Also, is your son likely to become your carer further down the line? Every area has a Carers' Association who may give him support.

    Best wishes, 

    Denby

  • Hi - no I have a partner who will be doing the looking after. Will check out the group you suggested- Thankyou 

  • Hi JaneW, sending you big cyber hugs xxx A cancer diagnosis is a terrible shock and none of us can ever be sure we are clear again. For your initial diagnosis to show spread to other organs is particularly tough, and you must be reeling. Glad you have supportive friends, family and a caring partner, this is definitely not something to carry alone. I don't have muscle-invasive bladder cancer (yet) but whatever comes along I decided to tell my daughter and young grand daughter the facts as I was given them, and answer their questions honestly. I think knowing the truth can be empowering as well as a challenge. However long your life will be, I hope you can fill it with pleasure and laughs, and enjoy every day making precious memories with those who love you so much. We are always here for you, so keep us posted. Hx

  • JaneW

    I am sorry to read about your diagnosis.  I would want to know the truth if I were your son.

    I know it's not easy. I am so glad you have lots of support.  Speak to them about it and the professionals. 

    Love Inanna x 

    I know that I don't know
  • Good morning JaneW. I read your initial post with sadness as it brought back memories of my dear wife’s cancer diagnosis in 1993. Although so many years ago, the details are still vivid in my mind as the shock, anger and great sadness are recalled. You speak about your partner and his help . Our lives changed instantly and took on a whole new perspective . This mutual support is the most important aspect of the coming months and years. We laughed and cried in equal measure as events developed. Sending best wishes, John.

  • Hi Thankyou for your reply, there has certainly been many tears already. Am hoping this lessens as and if acceptance kicks in 

    Best wishes to you 

    Jane

  • So sorry to hear. Take all the love and support that’s out there Heart