Hi all hope everyone is OK x this is just a bit of a moan really.. I start my maintenance bcg treatment on weds after thankfully having a clear rigid cystoscopy following my induction bcg treatments.. I went to town with my friends today and they wanted to meet again Wednesday I said I wouldn't be able to as I have treatment.. they looked quite shocked even though I had explained my treatment plan will be a long process .. they seemed to think that my all clear meant it was all over even though I'd explained it all to them ..they said is that why you've been hyperactive lately because you're worried.. I really don't think I have I'm just trying my best to be upbeat and happy ..sometimes I don't feel that way but I'm trying my best... my husband has been feeling down lately and I find I'm walking on eggshells sometimes sorry to be a moaner but just had to get this off my chest tonight.. take care all and thanks for listening tomorrow is another day xx
Hello Hou, hope you are feeling in better spirits this morning. You have my full sympathy, I know just how you feel. I've just completed the full 27 BCG doses which stretched over 4 years, and a long drawn-out demoralising process it is. Sometimes I felt embarrassed having yet again to drop out of social events or miss my pilates classes because of the treatment, I felt like I was making a fuss but it was definitely the right thing for me. I found it best to stay home on my own close to the loo over the three weeks of the doses, rest up and not deal with any additional challenges when I felt below parr. Because I live alone I was able to flop around, watch box sets and eat readimeals during the treatments. I think people quite understandably tend to forget the seriousness of what's happening for you when it drags on for so long, and they don't get that the side effects are unpredictable. For example Dose 25 no reaction at all, Doses 26 and 27 both whacked me out. Then there are the 3 monthly screenings which are of course stressful however brave we try to be. One all clear cystoscopy and people can think it's all over. If only! Cancer is a lonely journey but we are all here support. We do understand. Sending love H x
Thank you for your encouraging words x great to hear that you have finished your treatments you have done well to have persevered with it all as I've been reading that so many don't... as you say the cystoscopys and treatment can cause so much anxiety..I am at the start of a long journey .. I am trying my best not to be down .. maybe I am being hyperactive but I just don't want everyone thinking I am a miserable so and so ... I always stay at home on treatment day but usually I'm ok the next day but as the treatment goes on I am guessing things will get harder .. last night I just felt that no one understands how I feel and even though it wasn't a big deal I just needed to share my feelings with others who are going through this too xx thanks again love Tina xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007