Hydronephrosis

  • 3 replies
  • 49 subscribers
  • 975 views

Hi all! Specialist nurse called me today to report the outcome of a recent ultrasound. I was previously made aware of what was described as a lymphocele but was today described as another type of cele which “could” contain the urine that leaked from my neobladder in the first five weeks. It’s dimensions being 80ml by 60ml. Today however, the nurse told me the ultrasound revealed a slight swelling of the right ureter at the top and the same as regards the kidney. She said the doctor suggested I self catheterise to relieve the pressure on the kidney. I informed her that I had little to no residual urine in my bladder so she advised to leave the self catheterisation and wait for my next ultrasound in September.However, I have seen some research which indicates that it’s not just the possibility of residual urine or reflux that needs considering but also back pressure if the voiding is not easy. So I’m a little confused as what to make of our conversation. Has anyone out there had this issue and how was it resolved?

  • I have neo & am unable to fully empty, so self cath every time I void. All depends how neo is lying. For the first few years I had alternating US or renogram, sometimes doing better than others - results always better from afternoon testing rather than morning. At my last few annual ultrasound kidney checks, they have noted hydronephrosis, sounds very similar to your results, but I understand that is not uncommon with neos due to some urinary reflux. A subsequent renogram was normal & the hydronephrosis was unchanged at my last US. 

    I do wonder if the hydronephrosis is particularly visible because US is performed while lying down (especially if bladder is full - I have learnt to be careful NOT to have full bladder) & would be interested to know if it would be as apparent if US done while sitting up. 

    You say you don't have any residual urine - how has that been checked? However, I suspect it's perhaps more important not to get overfull & get reflux. I suppose straining to empty might force urine back & certainly in the early training days I got painful kidneys. 

  • Thank you for your reply Teasswill. I know there’s little to no residual as I still self catheterise 2/3 times a week. I sincerely hope that we both find some kind of resolution to this issue.

  • My consultant doesn't seem bothered by it. I've noticed that before, when the person reporting on test results indicates a problem & my consultant says it's fine. I don't mind self cathing to empty, just seems normal now. At 10 yrs post op, I hope any serious issues would have cropped up by now, but I'm always relieved when annual check is all OK.