Hi all,
Yesterday I came off social media so thought it was about time I went old school back to forums lol.
I was diagnosed with kidney cancer 2015, after having a kidney removed cancer was found in my bladder. After many years of treatment (mito initially until that had to stop, then bcg) and countless rigid cystos I was given one last chance at an attempt to stop the re-occurring non muscle invasive tumours (EMDA). This would mean I would have to self cathertise due to a stricture I have and would last 9 weeks. a couple of weeks ago I found out I was going to be made redundant the first week in February so I contacted my CNS and asked not to go ahead with EMDA but to go straight for the bladder removal with a view to the end of all the trauma of the past 5 years and the complications that have come with it.
So now I'm heading for that, I have a CT scan a week on thursday - chest, abdo and pelvis, the usual stuff; in preparation for hopefully an operation to remove my bladder before I get made redundant. I just couldn't see a way that going through treatment an then trying to find a job with the possibility of this operation next year as this would not be a USP for me to my potential new employers lol.
My consultant has explained nerve sparring and the chances it won't work, I know I'll have a back for the rest of my life but it will be a bag that will change my life - it won't be a bag that weighs me down like cancer has, it will be a bag that reminds me that I have fought the hardest I could until I had to give up the one thing that potentially can kill me; my bladder.
I feel for anyone who goes through this, in my mind, one of the most invasive of cancers as far as treatment is concerned; I also know I will need loads of support which I will take with open arms.
