BCG Treatment

I am reassured by that; I thought I was being over the top as I had already bought some tena-type pads as blood leaks after procedures, and a bottle. I had assumed that would be spill proof; that might have been interesting! I'll check - with water!

I'm finding frequency a bit of a problem, especially at night, which is a bit tedious. I look forward to this improving.

Glad the chemo has worked, so far.

Peter.

In preparation for my first BCG, which Tena-men is recommended? Or is it a suck it and see situation? (not literally  ). I'll get some samples first 

I bought light but found blood leaked through the other side. So, next time, I'll buy medium.

Night frequency is indeed tedious. Worth making sure that from mid afternoon even, you avoid caffeine drinks, possibly tomatoes, and anything else that may prove irritant. Lemon barley water is a good flushing drink. And Mr D has a gammy leg so can't run to the loo. So I have put an old flannel in the bottom of a washing up bowl, on a towelling bathmat, next to the bed, with 2 bottles in it. The flannel keeps the outsides of the bottles dry ready for the next time in case of trickles/sloshes. Not having to get further than the edge of the bed helps with getting back to sleep [and minimising the disturbance to me!] Oh and £1 glow-in-the- dark tape from t'web helps locate them without putting the light on.

You're not being a bit over the top, I regret to say I also unzipped a flat cushion, wrapped the inner in plastic, with a folded towel on top, zipped it up and put on car seat for the drive home from hospital as if in a sitting position the tena pants didn't always, er, work completely. Just easier to deal with if necessary and that way just looks like a cushion so .

Hope this also helps,

Denby

Great ideas!. I love the washing up bowl. You are creative. The cushion sounds a good idea as I find sitting down for any length of time (30-40 minute drive home) is sore underneath - perineum? Might try that. 

I bought the lemon barley; nice change from water and the lemon makes me drink more, which is helpful. I didn't know that tomatoes are an irritant. I now only drink decaff tea and coffee - except when I am desperate for caffeine after a stressful time, then I weaken with a decent coffee!

I do have a plug in electric night light, left behind by the previous owner - thank you to her

All helps,

Peter.

Blimey, does it affect you that quick? On the drive home? 

Well it is depending on traffic in the city up to 3/4 hour, and in his case yes afraid so...

Denby

I drive myself home after doses (50 minutes) and find it distracts me. Then I race into house a sit with my feet up on sofa and watch mindless tv for the second hour of holding. I find standing up makes it harder to retain (gravity I guess) I drink Robinson's Crushed Lime and Mint cordial which also slips down nicely and isn't very sweet. I have a litre bottle I fill with the squash when I get up in the morning and I try to drink that and refill at lunch time as well as tea and coffee (and the odd glass of wine ). I firmly believe keeping things well flushed is the trick. xx

I'm on my induction BCG; only had 2 lots. But I I'm finding I get waves of fatigue with my legs like lead; seems to come from nowhere.. I simply have to lie down. I'm not sure if this is from the treatment or if it is psychological, dealing with the impact of the diagnosis and/or the treatment. i know this is not major but I was wondering if this is usual.

Hi gandalf, I have sometimes felt like that after BCG doses but often I don't. No predicting it. I treat myself gently in the weeks after doses and plan an easy life so I can flop if I need to. As you say in past few months your poor body has dealt with waves of shock, natural anxiety and doses of BCG, it's entitled to be tired. Only another 4 doses and you'll get a couple of months holiday from all things bladder. Sending best wishes. xxx