Hi guys, I have today been diagnosed with a superficial growth to my bladder wall. Really anxious even though my McMillan nurse said this is a common thing. I’m really more anxious that they have discovered this now in my bladder but awaiting results for my CT scan I fear there’s more to come anyone recently had this? I’m only 50 this year and am fearing the worst. Rick
Hi and welcome to the group. We know how anxious you must be feeling as many of us have been there. Firstly, bladder cancer can be treated successfully. CT scans are standard and usually to rule things out rather than rule things in. They also give a better picture of what they are dealing with. Can you let us know what you have had done so far to be diagnosed. Superficial usually means early stages which can be easier to deal with. I don't want to speculate on where you are up to. Let us know where you are at and we should be able to give you further info. Best wishes.
Hi I was diagnosed with bladder cancer discovered by chance on a CT I had for a problem I have with my liver. I know how anxious I was . This was 9 weeks ago. I had a TURB 4 weeks ago . The tumor was low grade and none invasive. Normally there is a repeat cystoscopy at 3 months after diagnosis. However due to covid 19 the follow up is safe to be carried out in a years time. I found immense support from this group . I am 56 and returning to work on Monday as a nurse . Hope this in some way helps
Hi Riley,
thanks for your reassuring message, I've just had my first CT and Cystoscopy yesterday and my urologist said I have superficial tumours, very small inside my bladder. I guess my next stage is to have them scrapped first and then analysis on them to see more of what is going on.
Best wishes
Hi . It sounds as though you have a good idea of where you are going with this. The next stage is a TURBT (trans urethral resection of bladder tumour). Sounds a lot worse than it is. Similar to your cystoscopy, but done under general anaesthetic. The growths are scraped away and a sample sent off to biopsy. Usually done in day surgery, but be prepared for an overnight stay. It depends on what time you go down. Stings a bit for a few days when having a pee. A couple of weeks wait for results, and this will confirm if it is cancer or not. The biopsy will show a stage and grading and this determines any follow up treatment. Unfortunately, this current situation is putting a lot of treatments on hold, so you may have a bit of a wait. You would be classed as priority, so your op should go ahead sooner rather than later. Remember, this is a one step at a time process, so try not to get too far ahead of yourself. Feel free to ask any questions, there is a lot of experience here. Best wishes.
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