Nurses

Hi,It doesn’t sound awful at all,the nurses sound very unprofessional talking over you as if you are not there.You have every right to feel fed up.It’s not unusual to see more than one consultant but you should have one that is in overall charge of your care.I have e mailed my urologist in the past or phoned the secretary as you have already done.What is causing you the most anxiety ? I’m sure you will find some support here.Love Jane xx

Dear Deli1577, sadly I've often had to say this. When you aren't being treated even half reasonably by those in the hospital, take someone with you. If there's no-one you feel able to ask to sit in on such an intimate thing, try to call the hospital beforehand or get there well early, and say you would please like to have a chaperone. If you take a friend you can always ask the nurses to draw the curtains round you so the friend doesn't have to see only hear!

Any kind of witness even one of their own staff, will usually make them act better. Please, hang on in there, ease your stress on here and get your full course in.

All the best, 

Denby

Thank you both for responding this evening x 

The advice about a chaperone is great thank you. 
of course there’s no way I’d stop my treatment, I just wish it was all explained a bit clearer to me, I feel like I need something on paper so I have something to refer to but I’ve never been offered this and when I asked about it she just said ‘you can write it down if you want’ not helpful in the slightest. 
im absolutely dreading going tomorrow 
I understand that there’s more than one consultant, I hate being pushed from pillar to post, there’s no consistency. 
I hate moaning because everything that’s happening is for my health. 
thanks again xx 

Hello Deli1577

Your treatment programme, tests and consultations with medical staff will be documented and copies sent to your GP. You should have received a copy of all these letters. If not, I recommend you request copies from your GP and the hospital urology department so you have your own record.

I found that having structure by way of a record of events helped me to understand it better.

CB

Hi Deli1577, sorry you are having a miserable time with your BCG. Just to say since my first 6 doses and follow up cystoscopy, I have had a cystoscopy every time after the next 3 maintenance doses. So roughly every 3 months. Now after 2 years I have a gap of 6 months between BCG doses but  cystoscopies are still 3 monthly. I was given a leaflet explaining the procedure at the start of my treatment but I have found NHS (NICE) guidelines on-line the most helpful source of information with regards to what to expect.  It is a bit confusing at the start of the process but it gets to be a more understandable pattern overtime. Hope your  next doses are less stressful. x

Hi Deli

No not awful at all, you obviously never read any of my posts.  I know exactly what you mean as I too get stressed & have had various problems, one being when nurses are gathered around me tugging at my catheter whilst I'm trying to eat my lunch .... There are some great nurses out there, unfortunately there are some not so great nurses too.   Previously I believe I've seen the best of the best, now's my turn to see the other side of things.  Don't give up, try ringing again.  If you don't get any joy put a complaint in, I have.  We're all here for you xxx

Thanks for all the replies and advice, I’ve not been reading other posts as I’ve found my own experiences so stressful that reading about other people’s have made me even more anxious to be honest. 
I’ve had my BCG this morning and was very brave and tried to get across how confusing I’m finding it all, especially the time frame of treatments and cameras. The nurse said she had explained it all to me at the beginning (the start of November!) so I said I could do with it written down for me and she gave me a copy of a sheet that they use to keep track. If she’d said last week that she was booking me in for the PDD I’d have understood when the appointment arrived. 

I do feel a bit calmer today I think XX 

Thanks again for the advice everyone, I realise I’m not the only one going through this xx 

Glad you're feeling a bit better Deli x

Thank you xxx