Annoying questions

FormerMember
FormerMember
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I am very lucky, after two bladder cancer operation the BCG treatment gave me Sepsis (twice) and BCG was stopped after my second A&E visit and 11 days in hospital. A week later I went for a blood test and was immediately back in the ward with AKI, after tests it found the antibiotics for the Sepsis have caused serious kidney failure and another two weeks with a drip.I do have a chronic kidney problem that has never troubled me before, since then I have been working to get fit and recover the strength lost from five hospital visits in six months. After all that I had to go back for another Cystoscopy amid dire warnings that missing BCG treatment could cause me to lose my bladder and have to wear a bag for life (you can buy those in Sainsburys). Shock horror, they could not fine a trace of any tumour and was told ‘Come back in six months’. Six months later a still pretty pink bladder with no signs any return of the tumour. I am now scheduled for 3 monthly tests to catch any future problems, my diet has changed to cut potassium input but I am back to a normal reasonably health lifestyle. I have cut out alcohol and eat less meat, I owe it to the people who saved my life to live a healthier life and give A&E a break.

  • Hi . It sounds as though you have had a tough time of it, but brilliant to know you are now clear. Great news. Stay healthy my friend. Best wishes.

    Best wishes to All,   rily.

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  • FormerMember
    FormerMember in reply to rily

    Good news, my last 2 Cystoscopy exams were cancelled due to Covid 19, I have just been informed that I will be tested next Wednesday. A few rule changes due to the pandemic but as I will be driving there I will avoid 4 separate bus journies to get to New Cross and back. 

    My last Cystoscopy in January was a little tense as I was warned the due to getting Sepsis twice after BCG I could be in line for more serious consequences if the tumour returned and without BCG I would be wearing a porta pottie or whatever they call it.

    I must admit that throughout my cancer story I have been very lucky, the operations, the care from those lovely nurses and even the very painful efforts to clear blood clots from a blocked catheter were carried out with care and sympathy. I do remember when two nurses were working on a particularly painful blockage, one said to the other over my groans 'Is it because he is a male' the other said 'No, it really is painful'. Happy days 

  • Hi Motoman. Hope all goes well for you next Wednesday. I am in in the morning for my flexi. No mention of Covid precautions, but I will find out when I get there. Good luck to us both. Best wishes.

    Best wishes to All,   rily.

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  • Wishing you both good luck xx

    Sue Xx
  • How weird no COVID test first Rily. You’d think there would be NHS-wide procedure. I had to have test48 hours before entering hospital for flexi and now have to have another 4 days before I can enter onology wing for my BCG. Good luck to you both. xxx